Started treatment

Hi Sazmac

That's great to read that so far you're tolerating the new chemo.

I'm not on either of these but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it'll be more easily spotted,

I've searched the group for previous posts which mention Folifiri and/or Vectbix but drawn a blank I'm afraid. Of course, this doesn't necessarily mean that no one else is on them but maybe just that they haven't posted about it yet.

It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

x

Hi, 

It is my brother who has secondary liver tumour. He had one in his bowel as well so has a stoma now. He was supposed to go back after an operation on bowel and liver in June to remove the second parof liver but his liver didnt regrow enough. He is now on his 5th session today of intense chemo with scans due on 16th Nov for results. He has had bad ulcers, skin acne , and damage to hands and feefrom first lot of chemo . He has a sore bottom which the dr says was sweat rash but he says its mucus coming out ! Dont know how to help him as he doesnt do very much . Loves Celtic and still loves pint .

Hi

So sorry to hear about your brother,  I'm fortunate that I didn't need a stoma. I've been warned about the ulcers and rash - isn't cancer just a charm!

I'm just over 1st treatment and today is turning into my worse day. From previous experience I know you start to get better and then start all over again. 

I find it so weird that the liver grows back,  did they not wait to get all the tumors together? For me, I have 4 which are too big to remove and I'm having the chemo (first 6) to shrink and possibly another 6 after.  In my mind that is crossing the t's and dotting the i's, which I'm all for. 

I damaged my nerves on feet and hands with my colon chemo which is why I'm on amyltriptaline.  Has this been suggested for him? I take 30mg at night and it does help and also helps with sleep.

There isn't a lot to do when you feel so rubbish.  I'm working through all the Netflix rubbish, if I feel energetic I'll do quilting.  It's what you can when you can.  Energy is sapped with it all.  I don't know about your brother but my body just wants to sleep itself better. 

Please give him my best. Also my best to you.  It's just as hard on this watching as it is on those being treated.  Take care of yourself too xx

P.s. I'm a Man U fan, but allowed as I'm from Manchester

Thanks for your reply,  i will ask him if he is on amytriptolene. I dont suppose you will know what I can give him for his skin , it looks red and mottled and his eyes are red so he looks unwell . He cant have his chemo today as his bloods were 0.7 . He has no friends and sits on his own every night while his daughter sits upstairs . I know he doesnt eat properly either. I think he will just throw the towel in if its bad news in November . So hard, but harder for all with this hortible disease. Wishing you all the best in your treatment. X

It all sounds so bleak at the moment,  but when you feel like rubbish (understatement) you really don't feel like taking.  With his life white cell count he will feel crap. I had that with my breast cancer chemo, nothing you can do except have the tummy injection and wait it out.

Food tastes awful. I say my taste is like the bottom of a mummies flip flop. No idea why, but it's beyond frustrating as you can get hungry and cook but the food tastes awful which is even worse as you're hungry.  Has he tried drink supplements? 

I'm recovering from shingles on my face and was advised not to use just calamine lotion but calamine and glycerin cream. I got it from boots and it worked really well. 

I really hope things are better in November.  It really is hard on the body and mind. This is my 3rd time with chemo and after the last I said never again,  but I looked at my family and thought,  nope keep going.  He has you and his daughter. I don't know how old she is,  but it must be terribly upsetting for her too.  Does she speak to anyone,  or even her dad about what is happening?

I pray that there will be a light soon for you all to focus on xx

I will try some of that cream thanks. I will find out a lot from here as my brother doesnt talk about things very much . Thank you. His daughter is 21 and doesnt talk to anyone , maybe her friends. We will get through this and  yes he has to focus on his family and do this for them . X

HighlandCow

Hopefully your brother will have some help for his rash by now but if not he can get help from a dermatologist and they can assist with what he is going through .

His oncologist should be able to help too .

Hope he is managing ok. Macmillan has some support structures that he might be able to link into . They also do counselling and some online support .

You could chat through options on 0808 808 0000.

My mum has been dealing with a spread from her bowel since 2009 so it can work for some people . It’s popped back up yet again but she is doing ok despite it . In fact she has yet to have actual symptoms of the cancer all treatment related .

Take care ,

Court