H i I've just been diagnosed with primary liver cancer. I have 3 lesions, so was told these were inoperable. Have been offered chemo- embolisation. Doctor then mentioned having levier transplant after treatment . Not sure what the outcome of treatment will be and what the likelihood of it returning. So much to take in and feeling overwhelmed.I am very fit and well so this was a complete shock to me. Any advice would be greatly appreciated.
Hi Rock queen and a very warm welcome to the online community
I'm very sorry to read that you've recently been diagnosed with liver cancer and although I had a different type of cancer I understand very well what a difficult time this will be for you.
You are right that when you are first diagnosed there seems to be so much information to take in and sometimes choices of treatment to be made. Most people find that once they get over the initial shock and they have a treatment plan in place they feel much more confident about everything.
While you're waiting to see if you get any replies from other members of the group you could have a look through some of the other posts and respond to any if you think the posters may be able to help you further.
When you have a minute it would be great if you could pop something about your diagnosis and treatment in your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
I had a TACE done 4 weeks ago. They said i would be unwell for 1 week. I was very unwell for 1st week and then felt absolutely fine. I was thrilled and started going for my daily runs and went back to work. Was absolutely great for the week and then got the most awful stabbing pains in my liver. Ended up going back to hospital and they did a CT scan, bloods and chest xray . All came back ok.. Since then i am getting random pains in my liver which radiate round to my back. Other times its stomach cramps. Trying to stay positive and not let it get me down but i am struggling. Seems to be so little information around about after effects of TACE. I was hoping my CNS would phone me this week so i could ask her but she hasn't phoned.Can anyone else give me some feedback about their side effects from TACE.
Hi Rock queen
Sorry to read that you're struggling and I can't help with your questions about the side effects from TACE as I haven't had this procedure. It would probably be a good idea to start a new post asking about the side effects and hopefully those who have had it will come on and tell you about their experiences. Alternatively you could use the search bar at the top of the page to look for previous posts on this subject.
As for speaking to your CNS, my experience is that they don't phone you unless they're returning your call. Mine have been very good over the years and usually phone back within 24-48 hours of me leaving a message. You could give her a call on Monday morning.
x
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