cml wants to claim PIP

I have Myelofibrosis. I started a claim last November and still have no answer. Had my interview and the report has not gone in yet. Terribly long and slow process. Start now and good luck for 2016 LOL X

thanks for yr reply esmerelda, hope u are successful with yr claim. any advice will be welcome havent got a clue what to write on the form. i look perfectly normal but am totally knacked all the time. i dont get any help from anybody but sleep loads x

hey. i also have c.m.l and my claim for p.i.p was denied. apparently the only benefit we caqn get is E.S.A.  

if you need help with the form contact the local c.a.b office they have people to help you fill them in, its a long slow process but worth a try

thanks shanes, iv filled the form in. dont think iv got a cat in hells chance of getting this benefit. the questions are very basic and obviously dont consider the effects of leukaemia and the effect of the nasty drugs we av to take.

I hope this helps in respect if completing the forms. I myself have just been diagnosed with CLL. 

I work in Social Services with those who have a sight loss. 

When completing the form what you need to do is to consider the question and not always put “yes” I can do that. What you need to think is can I climb the stairs. Well yes but it takes five minutes then I need to take a rest or it causes me to experience severe physical discomfort and record this in the application form. You need to evidence the effects and not always the capacity you have. 

The forms are devised for physical disabilities and not specifically CLL or any other associated conditions. 

I hope this helps. 

Hi Carolt1

I have CML ive been on DLA for 3 years now.  To help make a list of all the jobs that takes a lot longer.

EG can you walk to bus stop BUT have to stop because of pain/fatigue. Causing you upset and anxious.

Tiredness. Do you get so tired you fall asleep when cooking. That could be a fire risk. Do you have microwave meals because of this? More expense.

Can you smell? I lost mine 2 years after treatment! So can't be left alone if cooking on hob toast etc as can't smell smoke.

Do you have cramps and muscle pain? If so have you dropped heavy saucepans or objects. I had cramp and dropped knife on my foot. Luckily i was ok? My grandchild has had to cut food up as hands would cramp around cutlery.

Can you manage to lift an iron? I can't anymore dropped an iron before.  My muscles are considerably weaker due to Imatinib.

Memory lost? Do you need help to count change in shops or fill in forms where cash is concerned? Do you needs constant reminders to take meds as forget.

 Do you need encouragement to eat? My appetite went down so much had to be told to eat.

  You get anxiety when going out alone due to pain or looking frail and feeling vulnerable?

Can you bend down to washing machine to load/unload washing?

I could go on.

Need any more advice message me.

Kind regards

LittleladyCML

Weakness Before Covid did you need help carrying shopping. I can't even carry 4 pints of milk now!

Hi I got PIP but with the help of a McMillan adviser ,they can fill out your form to give a very clear amount of information to help get your award,they are clued up on what to write,try them they managed to get me PIP,though may take a few weeks,good luck,Dougie