Hello. I was diagnosed with CLL last July. I thought I was going to get away with going for rest of my life without treatment as it’s supposed to be a slow grower. Clearly not for me. I have a 2 hour appt at the Queens cancer hospital at cottingham very soon. I have enlarged lymph nodes both sides of my neck and it seems there is cancer in them. And also another suspicious looking lump in my neck. Sp I’m really frightened because I think I’m going to be starting some sort of treatment. I hope this CLL hasn’t changed and become another type of aggressive leukaemia. I know what’s coming because 5 members of my family have had cancer and I lost 3 of them. But none of them had leukaemia. So I’m awake most of the night. Can’t sleep. Awful when you can’t sleep. Goes with the territory I suppose. Does anyone else have this type of cancer? I’ve been trying to prepare myself for what’s coming, mentally. But it’s very draining.
Hi Lopez and a warm welcome to this corner of the Community although I am sorry to hear about your CLL journey to date.
I am Mike and I help out around our various Blood Cancer groups. I don’t have Chronic lymphocytic leukaemia (CLL) but I do understand this journey rather well as I have been living with and treated for 2 very rare types of T-Cell Non Hodgkin’s Lymphomas for coming up to 26 years.
Although CLL has the word ‘Leukaemia’ in it, in Heamatology terms it actually comes under the umbrella of Low-grade non-Hodgkin lymphoma - yes very confusing I hear you say.
This is why we have a dedicated CLL, SLL and HCL support group on the community.
It would be worth copying the text on this post and putting a post up in the CLL group.
