Hello all,
Talking about how I'm feeling isn't my strong point. I was diagnosed with MDS in 2023. I'm whats called a watch and weight!
I suffer with Basal cell carcinoma, and have just had Radiotherapy treatment for one on my scalp. I thought I was coping, I'm not! The hair loss has impacted me greatly. I will have a 5cm circumference of permanent baldness, but at this time, I've lost the hair on the top of my head.
Please help..
Hi Nic02 and a very warm welcome to the Macmillan Community but so sorry to hear about the journey you have been on.
I know from experience having been on my cancer journey for over 26 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable), Asbestosis and Prostate Cancer that navigating this journey can be such a stressful and challenging time.
I have had a total of 45 Radiotherapy zaps over my years plus 15 years of UVB and UVA skin treatments….. but I have no experience of hair loss on my treatment areas…… although I have completely lost my hair on 3 separate occasions..
It would be good for you to talking with and getting support from people who have walked or are walking the ‘exact same' journey….. so can I recommend that you look to join and put up your own post in our dedicated…….
……. support group as you will connect with many people who have been treated for BCC.
As for your MDS……. we do actually have a group covering this…… follow the link below and introduce yourself.
MDS/MPN/ET/PV/myelofibrosis (MF)
As always the Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
