Hairy cell leukaemia

FormerMember
FormerMember
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Hi

I was diagnosed with HCL on 6 June 2006. Yes 6th of the 6th of the 6th. ironic eh?

I would really like to meet anyone who has Hairy cell leukaemia (HCL too).

Anyone out there?
  • FormerMember
    FormerMember in reply to FormerMember

    Hi Wendy,

     

    Hope all goes well with your likely forthcoming chemo.  Stay strong and keep on trucking....

    I trust you had some great weather up in the North East last week, it was terrific down here, couldn't believe all the sun, and a first for me... putting sun cream no my arms when out walking in March!  A bit cooler now, but is April so we can expect some showers I guess.

    *************************************************************************************

    Hi Yorick,.

    You have all the fun with these novel remedies... mind you, I use bicarb too... I add it to cream of tartar, mix it with some flour, sugar and eggs, beat it all up, then whack it in the oven to bake a cake.

    Seriously though, do you get blocked up sinuses? I've had them for decades, pretty much used to it now, so hardly notice as it seems normal, ha!  Apparently, we'd all do better reverting to all-fours, as the sinus drainage hole would then point downwards a bit - by walking upright, our sinuses don't drain properly. There, how's that for today's factoid?

     

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Frank

    I have had blocked sinuses in the past but only once or twice. I'm 6'3" so we tall people walk with our heads looking down. Otherwise shorter people would look up our noses!

    Had to fork out £33 to an osteo today because I've strained a muscle in my back. Two more visits to go he reckons. Because I feel tired all the time I fall asleep in the armchair. When my head fell forward I think it pulled the muscle. My hip's been painful, my neck, plus numbness in my left pec and fingers.

    I'm getting like George Burns. He said "I get up in the morning. I read the obituary column. If my name's not in it, I go back to bed!"

    The srut on my garage door broke 3 weeks ago so it's been a struggle to open and prop up with a piece of wood. Having a complete new door fitted tomorrow.

    And finally... a man went to an osteo. He said "I think you guys are quacks but my back hurts, so you're my last resort." The osteo twists the man's back and the muscle goes back into place. The man stands up and says "Yes, that's marvellous. All the pain has gone". The osteo says "Do you still think we're a load of quacks?"  "No", says the man, "I stand corrected!"

    Enjoy the sunshine. I bought a new cotton jacket with a zipper on Ebay for £10 including postage. Good bargain. Unfortunately I bought a pair of Scimitar shoes for £25 which reviews say will fall to bits in 2 months. Can't win 'em all.

    TTFN

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Yorick,

    Ah, that George Burns was a belter, loved the film he did with Walter Matthau, playing two old Vaudeville act geezers reuniting for one last gig...  The Sunshine Boys... Burns won Best Supporting Actor Oscar for that role, wow, back in 1976... when he was a lad of 79... and he lived another 20 years!

    Yeah, I guess we can't win them all... since reading your message, I've developed a twinge in my back... how weird is that? Probably cos I lounge about on chairs in odd positions, I mean, not very good posture.

    Talking of weird injuries, how about these sporting ones, listed on the BBC website the other day:

    Richard Wright: Injured shoulder falling through loft while trying to pack away suitcases

    Rio Ferdinand: Strained knee tendon watching TV

    Dave Beasant: Severed tendon in big toe by dropping bottle of salad cream on foot

    David James: Pulled back muscle reaching for TV remote control

    Alex Stepney : Dislocated jaw shouting at team-mates

    Charlie George: Cut off finger with lawnmower

    Kirk Broadfoot: Burned face when egg he had just poached exploded

    Jerome Boateng: Aggravated knee injury in collision with airline drinks trolley

    Mmm, I guess we've all struggled reaching for the TV remote control...... so we best keep taking the tablets.

     

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks for those, Frank. Very interesting. When I smoked cigars, people used to ask me why. I used the line that George Burns pinched off an earlier celebrity "A woman is only a woman - but a good cigar is a smoke." Of course, like me, he only said it as a joke. Gracie Allen had most of the funny lines in their show.

    Young people don't know what they missed with comedians like those, Chick Murray, the one with Our Eli, the Goons, ...ah, those were the days. Luckily some of their routines are on the web in video. Chick Murray would say things like "I was walking down the road the other day. I knew I was walking...cos I was putting one foot in front of the other. I looked over the road  and I thought I saw David Cameron. And he thought he saw me. But when we crossed over it was neither of us!"

    And my favourite...Bluebottle asking Eccles the time. Eccles hasn't got a watch but he says it's 8 o'clock because he's got it written down on a piece of paper. Why? "Because I asked a man this morning and he wrote it down on a piece of paper. And it says 8 o'clock." But what happens when somebody asks you the time and it isn't 8'oclock. "Ah, well, then I don't tell 'em!"

    Compare that with Jo Brand's 4 jokes, "I'm fat - I like cake - I hate men - I love sex." Yet she earns a million or so a year.

    Never mind. I get the old age pension at the end of May to add to my private pension, That'll cheer me up a lot.

    Moses went up the mountain to get the Commandments. God said "There are 10 of them on stone tablets. Take them to your people." Moses said "They're heavy, Lord. I can't carry them all at once. Especially not on an empty stomach." God said, "Okay. I want you to take one of these tablets four times a day after meals!"

    TTFN 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Yorick,

    My immediate thought was your Good Smoke quip originated with Groucho Marx... but the power of the internet tells me it's from a Rudyard Kipling poem called 'The Betrothed' and I wouldn't have guessed that in a million years.

    http://answers.yahoo.com/question/index?qid=20100222011324AA0wm3t

    It's a long humorous (or maybe serious...) poem, which I sped-read, so I've just put the link here. Worht a look, especially if you know your cigars.

    Keep on truckin....

     

     

     

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks Frank, that was entertaining. Similar sentiment to my own joke at the supermarket.  I told the cashier "That Bag For Life you offer - ir's like getting married."  He said "No. With our Bag For Life, when it gets old, tatty and worn-out, you can replace it with a new one."   "Yes," I said, "EXACTLY like getting married!"

    So, well-researched, Frank. You can have two bonus marks and a sweet out the jar! (My own personal catchphrase based on infants school, when on your birthday, you could take one sweet out the teacher's jar.)  "Oh frabjous day! Calloo callay" he chortled in his joy. (Jabberwocky)

    When I used to sing and play guitar in pubs and clubs, sometimes if it had been a good evening, I used to end by saying "And gentlemen in England now abed, shall feel themselves accursed they were not here." (Henry V).Then I'd say *And if you're driving home, remember that lady driver last week who swerved to avoid a child...and fell out of bed!"

    Ah, memories!

    TTFN

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Yorick (and anyone else out there...)

    Gee, so that was Easter..... had a trip to Manchester on Monday for a photo exhibition at the art gallery, then a meal and a French film at the cinema. Yesterday was going to be a quiet day, but I ended up drinking too much wine, just as well there are only 3 kinds - red, white and pink ha! - so this morning I find myself half-p*ssed... but that's a 50% improvement overnight.....walked home, lost my keys AFTER I'd got in the house, took ages to find them, I dunno. If I knew what I was doing, I'd be dangerous....

    Take care, cheers.

      

     

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Fran et al

    Found you at last!!  I absolutely flummuxed as to how to get out of the CLL etc forum.  I've looked at everything - just about - and right clicked but somehow I just can't see how to get out of it.  I'm getting somewhat fed up with all the emails on CLL as there are dozens of them every day!!  If any of you can help as it seems the MacM IT people aren't interested replying to their emails.

    Otherwise - I'm doing OK.  Limbs a bit achy after the run on Tuesday and getting caught in an almighty rain storm which needless to say made me extremely cold and trying to see with rain on your glasses and  about two inches of mud on my shoes was just the pits!  When I tried to unlock the car my hands were so cold and stiff I really struggled to press the remote button to unlock and then to lock it when I arrived home. 

    Take care and keep well everyone.

    Florence

     

  • FormerMember
    FormerMember in reply to FormerMember

    Ooooopss!!!!!!!!!!!!!  Frank - disaster I've changed your sex and addressed you as Fran!!  Sorry!!!!!  I doubt you want to be a woman!!

    Fx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Florence,

    I noticed you said you're having a problem turning off your email notifications. Sorry to hear you haven't had a response to your emails about it. Was it community@macmillan.org.uk that you emailed? Drop us an email on that address and I'll look out for it and get them turned off for you.