Hi there
My husband had renal cancer diagnosed in May this year and found to have spread to his vena cava and unfortunately a blood clot. Tumour very large so under two teams urology and cardiology.
Had to be on blood thinners and then. Operation was July 20th. He's got a scar from near his throat to down to past belly button.
He was discharged from hospital after 7 days despite a 12 hour operation which included being on bypass.
We had no information about how he would be after the operation except small booklet from cardiology.
Hes been so unwell and very weak and no appetite. Hes had an issue with his scar large haematoma that has bled. Like he had been shot. (Sorry if graphic) wouldn't stop went to open access surgical unit and they said yes it's normal it will happen could be for weeks. Off you go home.
I've done a self referral to District nurses and they came today and really helpful.
We had lots of help prior to operation. But feel totally abandoned by hospital now.
No referral to any cancer specialist. And follow up with surgeons in 6 weeks time.
Sorry for long post.
Couple of questions.
Anyone else had dual surgery. ?
How long did it take to start feeling a little bit better after operation? And any advice ?
Anyone have experience of haematoma under scar?
Many thanks
hello, I'm so sorry to hear about this incredibly stressful situation. My husband (61) was diagnosed with a very similar tumour in June 2025 (large kidney tumour, thrombus into inferior vena cava and renal vein, massive pulmonary embolism and lymph node involvement). unlike your husband they could not operate, so he was put directly onto cabozantinib as a monotherapy, along with daily blood thinning injections and beta blockers. As I understand it, targeted treatment for kidney cancer slows healing processes elsewhere in the body (they wont even biopsy him as hed have to come off the treatment) so I would think they'll refer your husband to a medical oncologist once he has recovered from the surgery. It's a huge onslaught on the body and I think they'll wait to make sure he's strong enough before immunotherapy or targeted tki medication can be tolerated and successful. I hope this happens as quickly as possible and you have proper support from the nursing team. For my husband the cabozantinib (on the lowest dose) has been effective in stabilising and even reducing some of the tumours. I like to think he'll even have the surgery that your husband had one day, or other new treatments that are coming along. Best wishes to you both.
Thank you for the reply. The operation is a big undertaking. And its taken a lot out of him. He managed to get up for an hour today but now back in bed.
Sorry to hear about your husband . Its such a stressful time not knowing and all the medical jargon which the professionals take in thier stride , but dont realise how scary it is for us dealing with it day to day
Best wishes to you to
sorry I couldn't answer about the surgery recovery time but I did look into the operation and it's very extensive and involves so many areas that I would imagine a longer recovery than more "straightforward" kidney surgery, which is hard enough. I hope he feels better soon.
Thank you. He was quite well when he came out of hospital but seems to be not well now. All his obs are ok.
Just so hard to see him so unwell . Fingers crossed he improves slowly
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007