Hello, I have been on a roller coaster ride since February this year following my annual check up in December (or MOT as I like to call it) and where blood tests showed my egfr to have decreased again and was recalled for a follow up blood test in January which showed the same result.
The GP then referred me for an ultrasound which indicated a 10cm mass in my right kidney. Then had an urgent referral to Urology for a CT scan and appointment with consultant where it was confirmed that there was a mass but no spread although there was a 4mm something on my lung which will be under surveillance and that I was to have a radical Nephrectomy which was done at the end of March and am still recovering from.
Looking back now, I suppose there were signs that something wasn’t right back in December 2023 when it was first noticed that my egfr was low and had to have repeat blood tests at which point it had increased again so not flagged. I then had further gp appointments for bowel issues put down to a diagnosis of IBS, tiredness put down to menopause and Vitamin D deficiency. I was so tired I would spend all my energy going to work and had nothing left to do anything else but just sit or fall asleep really early. At least I have an excuse for the fatigue now!
I am now waiting for my follow up appointment to see if I will need any further treatment. This wait is the worst.
I am not sure what I am feeling at the moment, just trying to “carry on” and act normal on the outside but I am really scared on the inside not knowing what’s coming. I am trying to inform myself what could happen (surveillance, immunotherapy and side effects, recurrence) as well as thinking about putting all my ducks in a row, worrying about my family. I am hoping once I know what the plan is I will start to calm down a bit.
