Cabo stopped being effective after 5 years immunotherapy next

What an especially difficult time for you.. so sorry. Consultants can be too matter of fact sometimes. Thank goodness for nurses! Good luck going forward. Please keep us posted xx

Hi Gill. 

I am now on my second dose of immunotherapy of pembrolizumab. So far I am doing okay. Just some fatigue, tired legs and some joint pain. So far easily managed with pain relief. 

I have included a link here for some information about the medication, which you may find useful. 

https://www.macmillan.org.uk/cancer-information-and-support/treatments-and-drugs/pembrolizumab 

When the clinica team talk about side effects, it does sound veey scary. However, like all medications they carty risks even paracetamol. So not everyone will get side effects and I am being closely monitored with blood tests and have a 24 hour helpine number I can call. 

Please accept my condolences of the loss of your father. This cant be easy and now having to start different medication too.

We are all here to support you, and there is another chat which I am part of, in this kidney cancer group titled immunotherapy 1st dose. There is about 4 of us in there who have all started this medication within 2 to 4 weeks of each other. This is open to anyone who wishes to join and chat. We just share our experiences as we go along. 

Please let me know if you need anything else. 

All the best, 

Jamie 

Many thanks Tillyv and Jamie.

I will definitely look at that group.

just trying to be patient waiting for my first appointment and finding out the treatment I will be on. x