Anxious

  • 3 replies
  • 79 subscribers
  • 140 views

Hi everyone, I’m Dave, 48 from Lancashire. I had a hospital appointment today after a cyst was found in my right kidney. I was ok, decided to go on my own as I thought it was straight forward. As soon as I went in to see the Dr we were joined by two nurses. One was a specialist renal oncology nurse and one was a cancer support worker. My heart obviously sank at this point. The dr has told me that they have found a very small lesion and from what they can see the characteristics are  consistent with malignant process and it’s very concerning. They plan to repeat the CT in march and then make a plan. He told me not to worry as the lesion is so small it’s unlikely to have spread if it does turn out to be malignant. I’m worried but I’m trying to focus on today as I can do nothing about tomorrow. It would be great to speak to anyone in a similar situation as im confused why the 2 nurses where involved if this still could turn out to be benign. I’m not sure if im being told the full seriousness or maybe they are trying to defuse a panic. 

  • Hi Dave, 

    anxious is where we’ve all been at some point in our individual journeys. Sounds like there are a couple of things from your visit. The consultants at initial concerns tend to have two nurses ( I’m also in the north west ) one will be your potential named nurse if it is cancer - they are good as they are your communication broker so you can get information from them and they can chase information for you. They are in many cases also supportive. But it’s a bit much when you’re anxious so many people in a room can overwhelm. 
    Kidney cancer from my experience is unique but everyone’s experience is different. I was diagnosed by accident as many are. There were a couple of things that stuck with me one was I was told it grows slowly which is why they take time in planning next course of action. For me there has been no symptoms,  no pain, and no visibility that you are actually quite unwell. 

    two kidney are great but not necessary ( surprising) they do a test on filtration rate ( how kidneys filter and clean your blood) gfr it’s known as. I had one kidney removed and apart from a couple of months post surgery to heal. Then you build your fitness up from there. But my gfr remained the same as before the kidney was removed. 


    sounds like it is just your kidney they are looking at so that’s a real bonus ( I know it won’t feel like that just now) the multidisciplinary meeting ( MDT) will have medical professionals at it and they explore the best and most effective way of treating the lesion it maybe that it’s just a lesion and they want to watch it for a bit as the best treatment. 

    I don’t know if that helps in anyway but it really is a trust the process situation and feeling anxious is part of that information on googling will blow your mind ( been down that rabbit hole!) 

    take good care and hopefully things will become clearer soon 

  • Thanks mate. Your words are very much appreciated. 

  • im confused why the 2 nurses where involved if this still could turn out to be benign.

    The NHS tend to get the nurse in when they give you a possible diagnosis of cancer for support reasons.  

    It does suit some people.  Some people find it supportive.  I wasn't in favour and I made a point never to let it happen to me again.  And it didn't!