Hi all. I’m very new to this community area. I have been looking for a support site for chats etc. A brief introduction- I collapsed in Feb 2024 and was diagnosed with spinal cord metastasis and lung mets too. The primary was in my right kidney. There is no treatment for my spinal tumour so I have had many treatments to slow the process. I was given 6-12 months and that was almost 2 years ago in Feb 2026. I had no symptoms that I could think of and only had severe neck pain and a shingles type rash two months before I was diagnosed. I remember having a couple of urine infections and one episode of blood in my urine which I was treated for as urine infections.
just wondered if any one else had similar diagnosis?
best wishes Kim
Hi Kim,
I guess my diagnosis is similar, but not the same. My primary cancer is also kidney cancer; my right kidney was removed with the tumour in 2018. Three years ago I was diagnosed with a metastases in my brain. The brain tumour is incurable. I have also had, and still have, lots of treatments to slow the process. I've been told to expect months to live rather than years. And actually that was a few months ago now.
I definitely have symptoms from my brain tumour now, so I know things are getting worse, but it is slow.
Now I concentrate on living as well as I can and making good memories with my wife.
Happy to chat.
Hi Kim,
my dad 71 y.o. has been diagnosed with kidney cancer, he had operation month ago and they took one kidney, urinal system on one side. He was again in hospital by end of November because his condition got worse. He has metastases in his lungs. He has been smoking for more than 30 years. Doctor recommended no treatment and charity coming to our home (he is currently at home) or put him into care house. He lost a lots of weight and has issue to eat. I am so glad that your condition is under control. Did you go through something similar? What helped you? Thank you Lucie
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