Newly diagnosed

Hi Trixie,

Everyone's experiences are different and a lot of it seems to be down to what health authority area you are in, plus the size and stage of your lesion as estimated initially and then as seen on the scans. Mine was found incidentally and they said it was "small" (2.7cms) and as it was found as I was about to undergo a hysterectomy, I ended up having it on active surveillance for two years, because the thing to remember is that the majority of kidney lesions are slow-growing.

I was able to more or less pick my time to go ahead with surgery! I could even have left it another year but decided that I didn't want to risk it suddenly growing excessively, even though it hadn't done in the two years. 

Your next scan should show the size and type of the lesion and your consultant will consult with you at that point - they may recommend a quick surgery or they may suggest that they keep it on active surveillance if it's seen to be small. If the latter, you can always ask for it to be done sooner, not later, if the waiting is going to cause you stress. In my case, the waiting and watching suited me very well, but others may want to get it over and done with as quickly as possible. Your consultant and team will be able to advise best on this, for you. 

Hi

Ive had 2 biopsies - 1 successful and 1 unsuccessful. Lesions is 4.2 x 3.1 cm and they’re recommending the surgery rather than a watch and wait. 
I know it’s clear cell, just unsure of the stage it’s at 

They don't count that as anything other than "small" - the cut-off seems to be greater than 5cms. But if they are recommending surgery, and you are keen to go ahead, that then leaves the question of How Long will you need to wait. 

That may depend still on your health authority area, your consultant and team, and also what they see at the scan they are going to do. They might indicate that it's not urgent, but if you feel less anxious by not having to wait a long time, make sure your consultant knows this. 

There might be others here who can give their own experiences of how long they had to wait, so that you can build a wider picture, but ultimately it's something that your consultant will be able to tell you more accurately at your next appointment which presumably will be straight after the next scan.

I guess the next CT scan will hopefully tell them what they need to know and then will go from there.

To be honest, I’d rather have it out than let it get any bigger