Lenvatinib and Keytruda

  • 3 replies
  • 71 subscribers
  • 286 views

Hi, l am a newbi here. Totally fit, no symptoms, but have been found to have kidney cancer with a tumour in my shoulder that is a secondary to the kidney. All this found after breaking my collar bone back in June. Am very appreciative about the future drugs, but at the moment l am still very angry with the consultant who wouldn’t tell us why l kept being sent for new scans and refused to tell us more. The anger is actually helping me through at the moment. Has anyone else here had those drugs used for their treatment please.

  • Oh, I don't like your consultant either!  

    There's quite a few on here on pembro (keytruda) and/or lenvatinib.   You can also use the Search facility to find posts in other forums as it can be used for other cancers too.  

    I was on other immunotherapy drugs.   btw shoulder is an unusual secondary.  

  • Hello Clays mum

    I don't like the sound of your consultant either! And my immediate thought is....ask if you can see someone else from the department. After all, this is just the beginning of your cancer j-word, and if you are already angry with your consultant, it will make the whole experience harder if you can't trust/communicate with him/her.

    Evidently, my hospital has 8 consultants for kidney cancer, so if yours is similar, it should be possible to transfer onto someone else's list. You need to be able to form a good relationship with your consultant! 

    I can't comment on your treatment drugs, as I had different ones.

    But I wish you well, and hope you have a successful outcome!

    xxx Candysmum

  • I’m on both drugs and have had amazing results. I also have a really lovely consultant who looks after under oncology,  not urology as I’ve had my surgery, who me very well tells me everything because I ask and understand absolutely because I’ve been a nurse all my working life. 
    there is an awful lot of literature on both drugs on the web and the cancer networks. I imagine you are having loads of scans because your tumour was found by accident- they take ones that show blood supply to the tumours as well as routine ones- lost count how many I had prior to surgery five I think. They will then decide if surgery is possible- I had stage 3?4 and surgery and immunotherapy ongoing. 
    I never saw the same surgeon at any of my 5 appointments pre surgery although a named one was apparently going to undertake the surgery. I was so cross I paid to see him! I’m still here to tell the tale 21 months later! 
    it sounds as if you are having drugs not surgery so are under an oncologist - if you can’t like them you must change and tell them why. Be direct and ask them if they are the one with the problem as oncologists are dealing with our crap every day and should smile occasionally! I’m