Thank you to all the people who post on this forum, i've been lurking for a few weeks and thought it was time for me to say hello.
I'm 63 and live in Scotland. In spring 2022 I had a great time walking a 1,000km walk in Spain, finishing in early June. In July and August of that year I was treated for UTIs as I had blood in my urine. Following a 5km Dark run late October i started having a lot of blood in my urine. Was put on two-week fast track and an ultrasound scan found a large mass on my right kidney. Had a CT scan 15th December and a long wait over Christmas and New Year for the results. Saw the urology consultant end of January and was scheduled for a robot-assisted, laparascopic radical nephrectomy of my 12.5cm (yes, cm not mm, I didn't believe it either!) on 13th Feb 2023. All went well and keyhole (well, four keyholes and a letterbox) was possible. I was discharged the day after the op. Recovery started off well and I was out walking short distances three days post op. Unfortunately picked up the covid for the first time 5/6 weeks after the op but by early June I was feeling really good.
I had a follow up CT scan late May as there had been a couple of very small nodules (biggest was 5mm) showing up on my December 2022 scan and they wanted to check them out. Devastating news mid-June that there were now multiple nodules on both lungs. Early August 2023 met with oncologist and because of a history of ulcerative colitis (an autoimmune condition) he was unable to offer me immunotherapy at this time so i'm just about to start targeted therapy with pazopanib. I feel pretty good at the moment and am dreading the treatment!
