Feeling really low today. My journey started 3 years ago when a routine mammogram found i had breast cancer again after surviving it 17 years ago. The breast surgeon wanted me to have a CT scan, to check i had no other cancers. Results of the scan showed i had kidney cancer. After having my right kidney removed in July 2021 I recovered well, had another CT scan to make sure everything was removed properly. I was told it was a aggressive cancer 3.8 out of 4. I was also told that the kidney cancer was now in my lungs. Immunity therapy would be useful to suspend the cancer, which I agreed to have.
I went back to the breast care team for a check up as surgery was put on hold. I have two tumours one hormonal which I am taking letrozole for and it is shrinking. After a biopsy on the 2nd tumour I was told it was grade 3 invasive. My oncologists said that the therapy would deal with my breast cancer as well as the mesteses in my lungs.
I started treatment 4 months ago, a oral tablet twice a day and infusion fortnightly. A month ago I became unwell a reaction to the treatment so it was all stopped while I recovered as my thyroid had stopped working. Another CT scan was done, the results were not all good. There is no change in the lungs or breast, bad news the kidney cancer cells are now on my liver and the linning of my stomach. I was devastated. My treatment has been changed and I restart the infusions this Friday, now it will be monthly. I really hope it works. Everyone thinks i am coping with things, but I am crying inside. Just wondered if anyone is dealing with similar cancers.
I do apologise if I have gone on, just wanted to get it off my chest. Thank you for reading my story. X
Hello again, I am glad that you are feeling a bit brighter today and I am sorry that I didn’t see your message earlier as I would have at least sent you one of my legendary hugs sooner 
The not knowing is awful, it eats away doesn’t it.
I had my right kidney removed last April. It wasn’t all plain sailing as I had to pay privately as there was no prospect of an operation quickly under the NHS….I even had to wait 2 months privately. I have had bumps along the way….for example I was sent a letter which I was only copied in , that was sent to the breast care unit to say they had found an abnormality….which fortunately was a cyst…..but the waiting was awful.
I also have a cyst on my other kidney which they are keeping an eye on as it’s developed walls so is considered to be a complex one and could develop.
Fortunately my last scan showed no reoccurrence where I’d had the nephrectomy and no change to the cyst, which makes me less concerned about it.
Family and friends can be great…..but also they can sometimes say the wrong thing to. I have the most wonderful husband who didn’t know what to say to me throughout this process….just kept offering me cups of tea! One of my best friends burst into tears when I told her that I had cancer and I ended up trying to console her.
That said it’s a difficult path for them to tread too as you don’t want to feel that they are making light of what we are going through…..but we also do need to have happy days. One of my friends got it spot on…..we could go out for a cup of tea ( with cake of course) and I could either pour my heart out….or not mention it at all……. Or laugh about how many cups of tea my husband thought I could drink in a day!!!
Hoe all goes well tomorrow, let us know if you feel up to it xx
