New here, its not me that's had diagnosis but my sis. Its been quite a journey for her since July this year, immense pain that was treated as a urine infection at first. Sent to A&E at beginnig of August to be given an ultrasound that determined a small mass on her kidney. Appointment for ct scan arranged for middle of August to rule out anything sinister. Appointment for Eurologist middle of September, barely in his office 5 mins, he said scan showed not a tumour possibly tail end of an infection would get her back in January!! I attended this appointment with her when he said that I angrily told him that there is no way he is leaving her with the amount of pain she is in. So emegency ct scan that would take 4 to 6 weeks and a further appointment with urologist in December. Fortunately my sis had number for ct department and kept phoning every couple of days the result a scan for 18th October.
At the start after attending A&E were ultrasound showed also a fibroid in her womb a further referral was made to gynecologist. Sis again phoned this department trying to get a cancellation that she could be fitted into. Gynecologist appointment attended 3rd November all clear from that fibroid wasn't anything to worry about but she did ask at the end have you had results of last ct scan? No my sis says, gynecologist says well they have been flagged on the system on the 21st October. Asked her when she was due back at eurology and sis said 7th December, at that she went off and phoned eurologist secretary to have the scan details put in front of him with an immediate appointment. Advised sis to phone them as well to get appointment brought forward. Hence appointment 10th of November were we go in and she is told you have renal cancer with metastis to lymph nodes and liver!! How could this not have been picked up in previous scan, it's spread so fast in a matter of weeks! Something the urologist says was not a tumour!! Between that, the length of time to be told anything and the immense pain she has been in. Probably would be even longer if she hadn't the strength to keep phoning different departments to chase things up.
So the phoning begins again as of Monday to find out the appointment time for biopsy to determine the type of cancer, Its been left too long already to my sisters detriment! Sorry to go on but feel she has been failed terribly so far 
Thanks for letting me vent
Hi Jules
Thanks for your reply, I tried to delete my post earlier today as thinking about what other people are going through it seemed selfish. I am a sister not a brother 
After reading some posts it seems that communication is terrible, not what anyone should go through. I hope you are well and recovering to your best health through this journey, my best wishes to you x We won't stop pushing now to get the best outcome for her. Its scarey that maybe some people who dont have support or strength to keep chasing are being left not knowing what to do. Thank you once again for the reply xx️
