Kidney cancer brain mets.

  • 2 replies
  • 68 subscribers
  • 422 views

Hi all my husband  73 was diagnosed with kidney cancer in 2016.  And had a Nephrectomy Since then it’s is in his adrenal gland  lungs. But two year ago it went into his spine and he had to have spinal reconstruction.  now he was told in December it was in his brain. He had stereotactic surgery but some of it was unsuccessful   And was told he had a few months.  He’s still here but mobility is not good.  He’s sleeping quite a lot    
Im guessing this will just get worse as time goes on   Is anybody in the same position  I’ve had home hospice care in place since June  but not needed them so far. Carers come in twice a day to help me wash and get ready for bed.  We’ve been married for 49 years and my heart is breaking.  

  • Hi Secnarf, my husband also has kidney cancer since 2014. He had his right kidney removed, on and off he's had it spread to other parts but the suitanib kept it at bay. Over the last 2 years he has been in & out of hospital with other health problems, this year has been the hardest.

    Last year it had spread to his spine so hoping his tablets would keep it at bay until this year he could hardly walk. 3 months ago he had an operation to remove the tumour at the same time had metal plates inserted into his spine were the tumour was. 12 weeks after surgery on his check up they had found it grown back. Before the surgery they told him he has months to live but don't know how many. I have looked after him since he came home from hospital back in August.  I help him have a shower & get him dressed everyday. We have been married 8 years and he only just started getting his pension.  

    My thoughts are with you. Xx

     

    Jodie97

    Sending big hugs to you all

    • Oh my Jodie you’ve both been through the mill   You sound as if we both have been through similar.   Yes Sandy has been on several trials which worked for a while He was on Pazobanib  Sunitab.  And he had Immunotherapy for a while.  But as he now is on End of life care  I actually thought I had prepared myself best I could  But now it’s getting nearer and I’m not so sure.  It’s such a terrible disease and you know in your heart there’s nothing they can do for him And I have a terrible feeling of helplessness    But it’s nice to be able to go out and buy all the things he loves to eat and of wee treats.   I wish you both all the love in the world and that you can both fight this last battle together and cherish all your memories. And thank you for replying to me.  It’s good to talk  Heart️x. Frances.