Hi

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Hi,

Just saying hello. I got diagnosed after peeing blood. That was my only symptom so I got lucky. I’ve had 3 uriscopies so far, one for the initial diagnosis (TCC), the 2nd under general where they decided it was RCC, and the third last week when they removed the stent. The stent was 3 weeks of discomfort so as much as the removal was unpleasant, I felt glad to see it out. Next will be removal of my right kidney on the 14th July. I’ve also had several CTs and they think it’s early stage.

I’m still trying to get my head round it. I don’t feel unwell (now the stent is out), I have none of the risk factors.
I just don’t feel I have cancer. But I know I have. Very strange.

Every one round me is sympathetic, helpful and caring, especially at work, but even though I know I’m not, I sometimes feel a fraud. Is this normal?

  • Hi Don's

    I'm sorry to hear your diagnosis. I too found blood in wee and after scan mass was found on my left kidney. Surgery was done in March and I feel absolutely fine. I too have the fraud feeling. It's very surreal. I think being lucky to have found it before spread makes you no less a sufferer but I totally get where you are coming from.

    Best of luck in your recovery. Keep posting

  • Hi there and yes, it's totally normal to feel like this.  A few people have posted to this effect previously.  It's fab that they have caught it so early as the best prognosis is after early detection.   I also think not feeling ill from the RCC is common too.  I certainly don't feel ill or classify myself as being "ill" as such.   Issues are frequently the side effects of the medication rather than the cancer, that's certainly my experience.   I have none of the risk factors either, no prior symptoms, but here we are.   Good luck xx

  • Hi

    i am sorry to hear your story I too have had no symptoms had a scan for gallbladder problems that was in Feb I am still waiting for surgery and I also have to have my gallbladder removed at the same time the waiting is horrendous I have even got a date it also feels surreal to me I can’t really believe I have cancer and think they might have got it wrong 

    thinking of you and good luck 

  • Hi Dons

    Feeling like a fraud - I get that. I have 'cancer'  but don't feel unwell. I'm just waiting.

    I don't know how someone with cancer is expected to behave. Work for me have been understanding but I wonder how long is reasonable. 

    All the best for your op. Hope for a smooth recovery

    Smiles xxx

  • Many thanks for all the kind words. After  writing, I started thinking more about my diagnosis. I guess acceptance is one of the stages, Roll on the 14th

  • Hi Don's

    I totally get how you feel, I had a shock diagnosis 4-5 weeks ago, they found mine by accident when they were looking for something else, I know I've got cancer but show no symptoms, I kept thinking that I was going to wake up and it was all a dream. I saw my urologist for the first time yesterday and he showed me it on the CT scan so now I have confirmation now, however the hospital has screwed up and the MDT meeting hasn't been done as I was "forgotten about" (their words) so I have to wait for another 3-4 weeks for that to be done. I asked about how quickly it would grow as I was worried about the delay but I was assured that they think it's a slow growing one that would basically just double in size in a year, so I suppose there's no rush. My problem is that I'm only 50 and I have 2 small children (10 and 5) so it's been decided that they won't be told unless things progress badly.

    I get the feeling of being a fraud too as everyone in work is supportive and asking constantly how I am and all I can say is I'm feeling well. It's all very surreal, sorry for hijacking your thread. All I can say is everyone in this forum is very kind, helpful and supportive and all have gone or are going through it, either themselves or close family.

    Byron

  • Hi Byron,

    No worries about hijacking the thread. Hearing similar stories helps, I’m just sorry you’re going through. I’m in my mid 50s with a daughter at Uni (and currently on Sumer placement) It was so weird to see her and know she has worried but not being able to do much but reassure her and be normal. Young kids must be tough. 
    Work is strange, I’ve been allowed to work from home and I think some of my colleagues think I’ve moved on! They’re all supportive telling me to take time if I need it. 
    Anyways, 2 days to go! I’ve never had a face to face meeting with the team. Hopefully I will now and Im curious to see my CT

    Take care,

    Don

  • It is very weird being seriously ill but without any symptoms. Very difficult to adjust to that situation.