Hello

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Just joined the group.  I have Stage 4 advanced renal cancer.  Started immunotherapy and tablets 2021.

  • Wave  Hi there!  What immunotherapy are you on and how is it going?  

  • I'm on immunotherapy  every 2 weeks and anixinib tablets twice a day on my seventh cycle and on my last scan 4 lymph nodes are shrinking please stick with it and good luck had my kidney removed 2020 x

  • Thanks for responding . Mine is a long story so will brief as poss. Kidney and huge tumour removed in 2012- 13 inch arch shaped scar. Brilliant surgeon- gone onto the vena cava too. No treatment post op as chemo doesn’t work for renal cancer.  All ok with 6 monthly scans until a chest X-ray in Sept 2020 showed it had spread to my lung- small node. Had it removed by keyhole in October 20.  Scan 6 months later showed it had grown back. Was on observance for 3 months as can’t keep operating . It was 2.5 cm.  Started immunotherapy and axitinib like you early Sept. 2021 every 2 weeks and tablets twice daily. After 2 sessions nodule had shrunk to 1.3 cm.  Scan in Feb showed it was stable.  Next scan in August . Had 16 sessions of fusion.  Started on 10mg Axitinab but reduced to 6mg due to side effects . Reduced to 4 mg in March - lowest dose .  Have had 2  breaks off both to give my body a rest.  Restarted therapy 3 weeks ago and tablets last Wed(had 6 weeks off them) .  Wonderful ..,felt almost normal !!  Side effects have started off again since restarting .  Very unusual apparently for cancer to return after 8.5 years .  Apologies again for long response .  Good luck and  best wishes .  

    1. Replied to Chester fc but don’t know how to forward onto you …help!  
  • I see it, thank you.   Posts are all public, it's just messaging that's private.