Bosniak 2F cyst.

Hi, I am also new here and thought I would reply as your story is similar to mine in that I also have a bosniak cyst on my left kidney that was found by chance looking for something else, it was actually found in September last year but told it was a small simple cyst and not to worry. Fast forward to December I received a call from a senior radiologist telling me she had reviewed my scan and wasn't happy with the findings and invited me back for another ultrasound with contrast which I had done on 23rd December, was told then it was a 7cm bosniak cyst and on first looking he thought it was maybe a 2F but wanted to discuss it with someone more senior before doing his report, Christmas eve I got a call from my GP telling me he had referred me urgently to urology on the 2 week pathway, so can only presume it was upgraded to a 3 or even 4. I saw urologist on 4th January who referred me for urgent CT scan on 12th Jan, saw my consultant 19th Jan who said it needed to come out, he said we wouldn't know for sure until tested whether it was malignant but had the hallmarks of cancer (several thickened septae and some tissue all if which enhanced on contrast), I will be having a partial nephrectomy and had my pre op assessment yesterday, haven't had date confirmed for surgery but was told they are looking at first week in March. Whatever mine is its contained with no evidence of spread.

The CT scan is to check the cyst in more detail and also for evidence of spread (I think in your case the fact you have been having regular scans already is reassuring, also now there are changes they are acting upon it, I have learned kidney cancer is very slow growing so again that is reassuring, also my thinking is until it has been removed and confirmed as cancer I am treating it as benign as otherwise I would worry myself silly thinking about it

Once I knew what was what I was a lot better, it is a stressful time especially the not knowing, I have had some bad days but trying to keep myself busy until surgery.

I wish you luck with your specialist on the 25th but be reassured if it is anything nasty they are dealing with it now, in the meantime try and keep yourself busy, try keep off the Internet.

You could also make a complaint to PALS about the lateness of the results of scans, in these situations we have to make a nuisance of ourselves by ringing for results, if you are on social media there is a great kidney cancer support group on there which is run by Kidney Cancer UK, they are really informative and friendly and I have learnt so much from them.

Take care.

Kerry.

Kerry, 

Thank you so much for taking the time to reply. I have read your journey with interest and envy really at the care and attention you seem to have received so far. I just wish that someone would make contact and talk, without me constantly having to prod and pester, however looking at many conversations on this platform that does now seem to be the norm in many cases.

• Your words have been so reassuring as I’ve felt so isolated up here, my wife bless her is an angel but I can see it’s affecting her sometimes more than me. We really don’t look on the internet, that is perfect advice and I don’t do social media but I’ll look into the kidney cancer forum with her later. 

Wrongly or rightly I’ve set myself up now that the discussion on the 25th will be one to dismiss me from the process of monitoring as I have heard so very little from them and this final flurry that is now occurring is just to tie up the loose ends. 

we are going away for a few days this weekend, my wife wanted to cancel that but I have insisted we go, forget everything and have the time of our lives, I know we are just putting things to one side but we really need to do this I believe. On our return no doubt it will all fall back into place and I can’t wait for that date to just get here and then do one. It will either be a day when I can breathe a gigantic sigh of relief or inhale deeply and start this process all over again. 

I will probably take the whole thing up with pals after the conversation on the 25th

I wish you every success and a very quick recovery from your procedure and again thank you  for taking the time to reply to me. I know I’m not alone, this whole process is just so bloody worrying, and draining. Thank you. You are a wonderful person

Please don't look on with envy, I guess I am lucky but you are too as have been having those regular scans despite the lateness of results, I will be keeping my fingers crossed for you that you get the good news you are hoping for, either way you are in the system and if it isn't what you expect you will be dealt with much quicker.

Unfortunately having to pester is the new norm now so keep pestering, I have spoken to my surgeons secretary and waiting list clerks a couple of times now, they have been really helpful and reassuring, I'm dreading the phone call with my surgery date but at the same time will be relieved as want this imposter gone as soon as possible so I can get on and live my life again.

In the meantime all we can do is stay positive and try not to dwell on the what if's until we know for sure what those pesky cysts are. 

I hope you have the best time this weekend, you are doing the right thing doing that, forget about it all and just enjoy yourselves, they say laughter is the best medicine after all 

Thank you for your kind words.