Hello, new here

Oh my goodness Louisa, what a lot you are going through.

Congratulations on the birth of your baby. Your emotions must be all over the place with what is going on. 

I am guessing that he will have the affected kidney removed. That’s what seems to happen and if everything gets taken out with the kidney then recovery is easier.

Obviously not sure what your hubby is like but my husband Dave dealt with his situation by talking about it with friends and family. He decided he wanted people to know what he was going through then he could use all of his energy to concentrate on recovery rather than wasting it on hiding things from people.

The main thing the body needs to get used to is operating with one kidney.

Best wishes 

Wendyx 

Hi Wendy

Thankyou for your reply I hope your husband is well. He’s not a big talker I think he’s still trying to process it. He’s going to speak to his employer when he returns from his paternity leave and he has some very good friends at work that I hope he will confide in as I know hes trying to put a brave face on for me and the kids.

I think he’s just trying to forget about it until he gets his biopsy results in after Christmas x

Hello Louisa

Welcome to the group. I kept my news to close family and friends and have been overwhelmed by the support. I have also had great support from the hospital too. My husband was able to attend on my 2nd appointment and found it helpful and asked questions I hadn't thought of. Unfortunately he was unable to attend this week, due to increased Covid restrictions. This group gives great support in these circumstances. We are all in the same boat, whether you are the patient or family.

All this has happened at such a busy time for you both. Take it one day at a time. Enjoy your Christmas and keep us updated.  I am due to have my kidney removed in a couple of weeks.

Take care and congratulations on the birth.

Carney

Hi Carney

Thankyou for your reply I certainly am finding this site useful and helpful. I’m hoping to be able to attend at least some of his appointments with him but I know he will just want to go on his own as he wants to protect me from it all. He’s not a big talker really but I’m hoping he’ll let me in eventually.  Just doing my best to help around the house (I had an emergency c-section so I’ve been off my feet too!) and give him time with the baby and also give him time to rest as I know he’s struggling with the pain from the biopsy at the moment too. 

I really hope your operation goes well and you can enjoy the festive period. 

Louisa

So his biopsy came back they are saying t1/t2 and they don’t think it’s any further along than that so I hope that’s a good thing. 2nd lot of bloods returned high levels of calcium, enzymes and a hormone called erthropoietin ( can't spell it) and too many red blood cells. Surgery very likely if it cannot be dealt with in other ways.
He’s got an appointment with an oncologist on the 3rd so hopefully we will know more then. He’s been told to rest and maybe think about taking time away from work which we really can’t afford right now. We’re hoping his work will be understanding and let him work from home a bit more or maybe go part time. 

Baby is only 2 weeks old tomorrow, we had a meeting booked to discuss our upcoming wedding in October which hasn’t been paid for yet and now looks like we may have to postpone. Everything’s such a mess

Thanks for listening