to be honest i am not much of a talker or a good writer . i turned 60 this year which was a good one as i thought i would not be around to see it to be honest.
1st i knew about it i passed a bowl of the red stuff my cancer fight started they day i lost my right kidney August 12th 2014 after the operation i thought right now to recover
but the DWP had other ideas anyway that caused me to have 2 operations to repair the damage inflicted on me which still causes the odd bout of pain to this day. anyway, some how i fell through the net as i did not have any follow up scans for the original cancer operation. about 18 months later after complaining about that they did a scan which showed the cancer had spread to my lungs, lymph nodes and pancreas i was under 3 monthly scans for approx 2years but things were stable until may 2020 when i was informed that they had started to grow and i needed treatment just as Covid struck but was lucky enough to have the medication delivered to my door started on forgotten the name 800mg which caused severe side effects so was reduced to 600mg they seemed to work for 9 months until i was told the pancreas had grown, was then spent 6 months of nivolumab immunotherapy via IV treatment which did not work that well with no side effects but came of that late September this year. on October 5th i started my 3rd treatment Cabozantnib 60mg after 3 weeks of bad side effects ie very high blood pressure lack of energy, motivation, fatigue full of aches and pains no concentration. and also the added worry every month was my sole kidney handlying the extra burden of all these treatments (which is not working well)
so i decided to stop treatment i informed the oncology department what i had done my consultant only works Tuesdays so she rang me and i told her how i was feeling physically and mentally could`nt face carrying on with it anymore anyway i she her on the tuesday the 2nd for a face to face meeting about this. but seems that according to the latest blood test results
from 28th oct that its sent my liver above the high reference limit, also effected my thyriod function is now above high reference limit ie possible failure FBC were both borderline anyway
i have come to the conclusion after 3 attempts of trying to slow the cancer down my body and mind has had enough of it
so bottom line is i now face 8 to 12 months with out treatment and having talked it over with the family that i want to enjoy what time i have left and be able to at least do my hobbies
now slowly recovering from the side effects and believe it or not since i made the decision i have had peace of mind ( but i still intend to fight it all the way to the end )
i hope this lot makes sense to yous all and not just waffle
ps this was all handled just by me as i am single with no partner
Dark Angel
