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Hi just a little run down on myself. 

IN 2014 I had a radical nephrectomy of my right kidney. All clear for me years 1month!! and then developed a solitary metastases on my chest wall and had a lumpectomy

After my last scan I was told it had spread to my pancreas and abdomen wall (all small lesions) thank goodness! I was started on suninitib  but had to come off after only1 cycle due to an unbearable sore mouth that stopped me eating and as a result I lost a lot of weight.

  • I am now on day 3 of cabozantinib and hoping I don't suffer the same problem. I so far I feel OK but it is early days. I just want to meet people who understand and can relate. Anybody else on Cabozantinib?  Sending love everyone's way x
  • Hi, I was diagnosed in September as having kidney cancer which has spread to the bones. I have been on cabozantinib for 4 months now and my last scan showed a small reduction in my kidney cancer and lung lesions. I have had side effects of tiredness, sickness and diarrhoea, but I find anything’s worth it if it keeps me here longer. When you are diagnosed as terminal  anything is a bonus. Hope the cabozantinib works for you and the side effects are minimal. 
    Regards

    Rose xx