hello I’m new to this and new to discussing anything about my personal experience other than to close family.
I was diagnosed with kidney cancer October 2020. I didn’t have any symptoms at the time apart from a blood in my urine with no pain. I washed rushed through to be scanned so this was worrisome but also happy that something was being done.
As this was just after the first lockdown I think that the doctors surgeries were taking early symptoms seriously as lots patients with any symptoms of cancer had been missed due to the first COVID lockdown.
within a week I had already had my appointment to see a urologist before I had my scans so this was quite scary. In my head I thought maybe I had kidney stones and they have passed now as I have no blood at all in my urine and totally clear so if I had left this for another week or so I would of not made a doctors appointment as I felt absolutely fine.
I had my surgery a few weeks later it all happened so fast.
I ended up having open surgery to remove my whole kidney and to release it from my colon as it looked as if it was invading it but to my relief it came away easily as I was also told that I would most likely have a colostomy bag after operation but I didn’t. so I ended up with a very very,large scar. (This is quite long I’m sorry )So my outcome was pT3a grade 4 tumour. It hadn’t spread anywhere else in my body so that was such a relief. I didn’t need any treatment but as it was a grade 4 tumour it has a high chance to recurrence which was a real blow to me. So I have 3 monthly scans. I’m due for my second scans next week this is why I am awake at 3am as having one of my sleepless nights this is the time my head starts to work overtime. I am positive and will feel happier once I have another clear scan.
