Advice please

I had a full nephrectomy and immunotherapy was mentioned, but I had been told many years ago that I had the beginning of an autoimmune disease...the oncologist suggested I didn't start immunotherapy at that time.  I was happy with that advice.

However, 9 months later they found lesions, very very small in my lungs and adrenal glands.  Would the immunotherapy have stopped this happening? I just don't know. I am on surveillance 3 monthly. They wont to give me any therapy until they see the growth rate. It won't be immunotherapy it will be targeted.

Now don't let this frighten u. Although not curable I am informed it is very treatable. I am blessed with good support. And I do trust my medical team.

My advice would be to discuss it with more people who have had treatment and then go armed with this information when u next see ur oncologist.

Whatever u choose I wish u well

Sending hugs  

Hey shep77. I had radical right nephrectomy in june 2023..13cms tumour grade 3. I took immunotherapy for 1 year as mentally felt better doing something rather than nothing. No side effects shown at the time. 3 months ago a nodule showed up on my opposite adrenal gland which was removed . Apparently it doesnt mean treatment didnt work but it may have stopped it going elsewhere so i was told. Recent scans showed 2 nodules on my thyroid which apparently are harmless and my thyroid was underactive although i had no symptoms and it may have been caused by the treatment so just took pills and it is now in normal range. Recent scan was clear so fingers crossed. If i had choice again i would still have immunotherapy but its a personal choice. Not many people get side effects i believe and if you did you could stop taking it anyway but good luck and if you want to ask anything else, messagr back

Ty  Doris your reply has also settled my mind, so I thank you.

I hope ur are well

Sending hugs  

Im glad.im very well thsnks

 Good luck to you x