So today’s the day I’m finally diagnosed. It will be nice to finally know what it is and what my plan is . Although my anxiety is going through the roof (pending doom ). I do hope that afterwards that my mind may calm down . I’ve been searching the site for peoples stories with stage 4 with Mets but there isn’t many to read (thankfully ) . I do still kind of hope that my self made diagnosis from the ct scan is extremely wrong . But that is highly doubtful. I do hope that with immunotherapy I can lead some sort of life for at least a few years . I just hope it’s not to late for me
Morning Kyle, I will be thinking of you all day today and hoping that your appointment gives you some focus to get treatment plans going. It’s the waiting for things to happen that is the most stressful thing in this game. Once you know what is what things may be more manageable in your head. I am trying to put myself in your position and my head would be spinning. Maybe stick your phone on record so you can play things back. I wish I had done that on some appointments. Please let us know how it goes today. What time is your appointment ? x
Hi Kyle - it was isolated and got it all. Almost 5cm, T3a grade 2, clear cell, had just started to try and sneak it’s way out, now on Pembrolizumab for a year. 1 IV done.
Are some things in my liver that were picked up on initial mri they want to keep an eye on, didn’t seem to worried at the time, have just had the 2nd mri last weekend and waiting for results now.
So it was slightly better than expected as in because of my age etc there going to really try . They have put me forward To guys hospital as I’ll probably have to lose a part of liver to . It won’t be robotic or key hole due to the nature . I may have to have a biopsy but that depends on guys and they may want to shrink first with immunotherapy. So it’s back to the waiting game. But I’ve been assured it will be asap . My kidney was huge
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