A week of fear and hope, it’s ending more in fear then hope, after seeing my consultants registrar on the 29th Dec I felt hopeful things were going to start happening, now I know how wrong I was, I was suppose to have a further CT scan the following week, then told it was cancelled due to the doctors strike, so waited another week then found out the registrar had not even passed any of the notes on, to anyone after our meeting on the 29th and that’s why I didn’t get the 2nd scan to see if my cancer had spread to my lungs, this weekend passed I was fatigued and in pain from the tumour I ended up having to be an out patient but spent the day in hospital having some test, turns out I have an infection in the bottom of my lungs and that’s what the pain them is not that the cancer as spread, that was positive news I thought, but then I have sprung on me I have been seeing the wrong consultants since the 29th and I have a new one that was discussed and sorted with an MDT group last week but nobody as informed me, I asked could I see my new consultant and was informed that he is on holiday for another week, they then gave me a prescription for a targeted antibiotic and discharged my at 6 o’clock my partner brought me home made some tea and went off to get the antibiotics only to be told it’s a white prescription and can only be issued in the hospital pharmacy, we ended up having call 111 because no hospital pharmacies were open, it was 8:30 by the time they called back and sorted it, my partner then had to get to the pharmacy before 9 when they shut she only just made it in time, stay positive I am told well while my partner was out getting the prescription I broke down and cried my heart out, I wanted to talk to my mum, I couldn’t because she died 18 months ago of cancer, I feel broke and empty and feel like I have lost faith in NHS and the team that is suppose to be going to help me, which ever team it is of course. What a roller coaster, just great full my family and partner are here for me.
