Hello everyone,
I'm currently waiting (an eternity it feels like) for a diagnosis, having been given a "more likely than not" comment from a Dr over the phone almost a month ago.
During that phone call, when (in shock) I asked what could cause this, he said "hair dye". Is this even a thing? My practice nurse didn't know, neither does my GP. Or my hairdresser. She said the wash in wash out stuff i use is like a mask, and not changing the hair structure. Surely if it was, there would be warnings on packaging, like cigarettes?! How can they make throwaway comments like that, with no substance to back it up? (How can they tell you this over the phone, with no idea where you are or who is with you?)
Sorry, just to add other related thoughts. Don't know if this is just the way my brain works, but, IF hair dye IS a possible cause, what else that I put on my skin, for example, makeup, face cream, shower gel, shampoo etc etc, is potentially being absorbed and causing an issue? Where does it stop?! (I'm sure this is just my random thoughts, but still ..... this is what no follow up is doing to me!).
Hi There
Wow!
Surely a "no one knows" kind of answer similar to the "what came first, the chicken or the egg?" question?
Rather a dangerous territory for the consultant to engage in IMO. You don't use humour or sarcasm, or comments with varied interpretations in those situations. It's such a silly answer, it's clearly not meant to be taken literally.
I had my initial, ‘it’s almost certainly cancer’ via a matter of fact phone call from the consultant- I was on my own, not really expecting it as it was my first contact, and was absolutely devastated when I put the phone down. In the long run it didn’t do lasting harm and prepared me for the worst but on reflection I wish that had been done in a more supportive environment. The difficulty is that the phone call has become the go to method of contact since covid - I wish we could get back to more face to face stuff. I haven’t really Wondered what might have caused the cancer I assume it’s most likely genetic - seems to have been quite prevalent in my family, I’d be surprised if hair dye was a primary cause.
Thanks for your replies. It does feel that there should be some face to face contact for information like this. I've seen ads on TV where people are f2f, supported for bad news.
I do agree with you about covid being the reason for phone calls, but disagree that this is the way it should be now. It may be that it's time saving, and more economical to do this by phone, but where has the care gone? Please excuse my rant!
I hear you, I haven't seen a doctor since the end of May, just the occasional call from the CNS to either see how I am or tell me I'm being sent for this or that test. No idea of the results of said tests other than a polyp in my bowel showed when they did the PET scan regarding my kidneys and lymph nodes, so I'm being sent to lower gastro for a sigmoidoscopy :-(
I feel like I'm being passed around hospital departments like a piece of meat
No care at all Just how much damage is being done to people's mental health, dealing with all this!
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