Hi there,
Please bear with me as it’s a bit of a long one this one!!
I had a 20cm tumour and my left kidney removed about 9 weeks ago. No symptoms before hand bar and was diagnosed as chromophobe which had potentially been there about 8/9 years! Had a few complications post surgery and needed catheter in and after being discharged but basically been recovering well.
My right kidney needed a stent due to extensive endometriosis. I had no symptoms of this prior to surgery but it is THIS that is causing me so many issues now. I am in daily pain which pain killers just don’t touch. I need the stent replaced on 17th July, just a few weeks away and I am literally dreading it as the pain at the moment is unbearable. The shooting pain I get literally stops me in my tracks. It hurts to pee and before I need to poo I am literally doubled over in pain for potentially half an hour. I have had xrays that show the stent is in the right place so they are assuming it’s both the stent and endo that are causing the issues.
As a 46 year old mum of a 12 year old and 15 year old, i long for my old life back and I feel I just can’t get back on track! I am usually an active person who is admittedly a bit of a work aholic and I miss all of this.
I was lucky that gynae were in on my operation. When I saw them a few weeks back they said that the problem is scarring on the urethra tubes so surgery to remove endo won’t actually help. I had another Mri last week and meet gynae again on 19th but was given the prostap injection to start the menopause as a temporary measure to help with the pain - yet to see relief from this but I know this can take time.
I guess I am just on to rant. With this being a rare cancer and all the additional elements I just feel so alone and that no one understands-I should be back fitting fit again if it wasn’t for the endo and stent and I guess I was hoping someone else might be able to share a positive news story having been in a similar position to give me a bit of hope that this isn’t something that will continue! Anyone even had a stent replacement and could give me an idea of what this would entail? Would really appreciate any advice/support. Thanks in advance xx
