Hi, I'm here panicking and don't know what to do. My mum was on Axitinib (5mg) plus dexamethasone (4mg) for her first cycle she started to feel less strength in her leg, making difficult to walk. We went to see her consultant and he increased the dose to 7mg. She did not get the chance to start it because she had constipation/bad pain in her abdomen and than little Diarrhoea for two days. We went to clinic for one day, they did the blood test and said everything looks fine. She had some IV fluids and we were sent home and advised to stop the treatment. Over the next 3 days she begin to feel even more tired and I notied she is sleeping to much, also sweting a lot. I called the Enhanced Support Assistant yesterday she was saying that it lookes that she is degradenting so quick, and if I have tought about what is going to happen is she is going to die. She is living in my house along with my husband two kids and my dad(her husband). I don't know what to expect and what to do. We are currently waiting to go into hospice for symptoms control, but it can take a few days.
Dear Roxi
i am so sorry to hear about your Mum and the pain she sounds she is in. I myself only could tolerate 3 rounds of chemotherapy as it made me so very ill with an upset stomach from hell each time. Obviously no one can say when someone is end of life. Again I am in palliative care with heart failure and end of life prognosis. All I can say to your Mum and family is going into a hospice doesn’t mean you will die there. I was in for 10 days in January then I have been in for 16 days this time and going home today. I hope it brings you some comfort knowing this at such a stressful time. Thinking of you Aileen otherwise known as Gooner on here.
Hi Roxi,
Sorry to hear your mum isn’t well at the moment, I know it must be a worrying time for all of you but as Gooner said no one can tell, I myself have a very dry mouth and feel very tired I have very bad diarrhoea from the treatment and under a gastroenterologist to see if he can help with diarrhoea I also have mouthwash from my chemo team to help with the dry mouth, I hope your mum picks up soon try to keep positive I send my love and best wishes to you and the family Sandy
Hi Aileen,
Sorry to hear you have not been to well I bet you are glad to be going home today, I hope you are feeling a lot better now are you still able to get out much these days, I have not been able to go out because of my diarrhoea problems and my right knee problems but I do enjoy looking out of my French door into the garden enjoying the sunshine take care of yourself love Sandy xx
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