Hi everyone,
I'm 27 years old, this has been my first major (and only) surgery. I'm 6 weeks post op and have since been told the cancer has been removed, albeit being T3 (Invasion of perirenal fat). I found out about the tumour in September this year.
Despite being told I am in the all clear, my emotions have been an absolute wreckage, and are very difficult to navigate right now. I bounce between feeling depressed to a general apathy/numbness to the whole situation. I'm aware i'm not coping with it very well.
I think my biggest question is how I feel there is this expectation to go back to "normal" to how everything was before. Yet only 3 weeks ago I was having thoughts of preparing a will, and how everyone will cope if I die. I don't know how to go back from that.
The illustrator in me thinks of it as you walking along the road of life quite happily, then for a brief moment the world around you blinks out of existence. And you look down and you see the void, going down, down, down - then as quick as it left, everything is back to how it was before. Except you know now that's there, waiting, beyond everything - and you can't forget what it looks like, and how it made you feel.
I was curious if anyone else post-treatment feels / has felt similarly, and what they did to help?
Tomorrow I plan to contact someone in Macmillan to maybe speak to a counsellor.
Thanks for reading, everyone.
Hi there CookieH, absolutely you nailed it and articulated it so well. This is exactly what we all feel and experience. It comes with the territory unfortunately and we have to work out how to live with it, because it's never going away. I'm a year since diagnosis and I feel on top of it now. I think that's due to a number of things; (a) Time. Everything takes time - to come to terms with it, to adjust lifestyle choices perhaps, time for new routines to embed. (b) Treatment - once you're on a course of treatment, or even Watch and Wait, the brain needs to adjust to the approach. And when you get the "it's working" feedback like you have, then that helps. (c) Reading - I read a few books to satisfy my thirst for answers/find out more about the stuff I was struggling with (CBT for people with cancer). (d) Sounds weird, but I think longer term the negative experiences and thoughts helped because when they stop or are overcome then they provide some perspective.to the whole spectrum of cancer experiences.
I realised I had to "learn to live with it" about 4-6 months after diagnosis. I had a problem - I was thinking about cancer all the time and I didn't like it. I took the summer off work - my GP signed me off. I hated it! I thought of the cancer more (admittedly I had a problem with my treatment at the time). I felt I had no me time and the house was never my own. I found activities to do and went back to work 3 days a week in Sept, going into the office now for the me-time, the commute etc. And there was a time where I thought I'd give up work because of the diagnosis. You've just got to try things out and see what works for you. You're doing all the right things, and noting the issue is the first huge step in working out the resolution.
Hi Cookiehoarder,
I think everyone goes through this feeling, once you are told you have cancer your mind and body are not you own, I believe you are doing the right thing by getting help from Macmillan councillors, they are very good and they will be able to help you, it is great news that you are cancer free but, in your mind and body are not accepting this, you need help to put in on track and get you out of this turmoil this will be hard but once you get help to put in on the right road you will begin to feel a lot better and you will be able to move forward, please let us know how you get on they are a great bunch on this community and if you have any problems or questions you need to ask we are here for you. Take care and all the best Sandy
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007