Recurrence / metastasis

1. Dear Westcoasr22, l cannot offer any advice, it is however very frustrating to get bits of info from different or unexpected sources. It's happened to us all l'm afraid. Just recently my owm local gp, discovered something which had been missed by oncology. He was diligent and ordered a rapid test which, l am glad to say, was negative. But the worry........ you can imsgine.
2. They all say keep strong, have patience but what do "they" know. I shall be thinking of you and of course your dear husband. My regards  Adrian

Hi I had same about 6 month after kidney removal all seemed ok.then appeared 2 lymph nodes which lead to 4 in the end they only seem to start you on medication when they reach a certain size not sure what it is . Good news is there's lots of treatment im on immunotherapy fortnightly and 2 chemo tablets a day had 7 cycles of this and they ate all shrinking so fingers crossed that continues my point is if they offer him this combination take it nurses o speak to say its a great combination and works very well hope this kinda helps good luck to you both x

Chester FC, thank you so much for taking the time to share your experience: it's very helpful. 

I'm glad to hear things are going well with treatment.

Best wishes xo

No problem.anythink.else just let me know

Hi Westcoast22,

Welcome to the group I know it must be a worrying time for you and your husband, I had a left nephrectomy of my kidney and also had my spleen removed in December 2019, I did not have a scan until the April because of Covid mine has spread to my lungs, my surgeon said that there was nothing else he could do for me and that I only had months, it will be a different story when you speak to the oncologist who deals with cancer there are so many treatments out there theses days, please try not to worry and wait until the oncologist decides what will be best for your husband and start him on treatment, once you have a plan you will find it is so much better as you can plan what you have to do, it is always the not knowing is the worst, please let us know how you get on and if you want to ask anything about anything ask away even if your are feeling low they are a great bunch on here.

take care Sandy xx

Well said Sandy, as always, spot on advice. . Hi Westcoast 22. Sandy is right go with the advice and best wishes to you and your husband. Best wishes Sandy, always thinking of you. You're a bit of a legend in my family. Xx

Next stage is probably some immunotherapy drugs, perhaps.  That seems to be the general approach.  But what do I know?  At least a week isn't too long in the waiting game stakes and the world of the unknown time space, we are all too familiar with.  Good luck.  

Update: oncologist meeting was of course way more informative and thankfully as positive as it could be. 

He's being referred to a kidney cancer specialist and will get stereotactic radiation on the biopsied lymph node. This will likely be paired with immunotherapy course with close monitoring continuing. 

When he was first diagnosed out of the blue and then sent for surgery within the month, it was a harrowing and traumatic experience: this is definitely still with us and continues to impact how we deal with new twists.

Now, as then, I am so grateful to be able to reach out to others through these online groups and continue to be amazed by our doctors and nurses. 

Big hugs to all xox

Westcoast22, you are more than welcome and thank you for sharing your news. Adrian

Hi Westcoast22,

 I am so glad you and your husband had a good meeting with your oncologist, the treatments are so good, thank you for letting us know how your husband got on, now you know where we are there will be someone who will be able to help you with any questions, you may have to stay positive, onwards and upwards sending you both love and hugs back Sandy xx