Hello my lovely friends on here, I feel a bit guilt posting this but I hope it gives some hope a reason to carry on regardless.
i had my CT scan last week and the results were on ready for my appointment with my consultant on Frida and my lung is still clear of metastasis and my back of hipbone is healed from the cancer eating into it. Fantastic news just can’t quite believe it .
They had checked my heart, kidney, where my other kidney used to be, my liver, bladder and other inside bits and everything was clear
So I ask as physically there is no cancer to be seen biologically will there be cells lurking that we can’t yet see and the doctor agreed but reassured me that the immunotherapy will continue working on them as well.
My Axinitib has been reduced from 7mg to 5mg with a two week break at 3mg to help sore feet and side effects. I am reassured that this will not impede the treatment.
vitamin B6 has been prescribed to help with sore feet and sore mouth
Thyroxine has been prescribed as thyroid levels low and I have all the symptoms including front inside hip pain that I worried was more cancer shedding hair like our old spaniel used to do and a very husky voice.
I didn’t know that that’s what the problem was but the consultant tells me I will soon feel a lot better with the Thyroxine, Axinitib reduction and the Vitamine B6. My side effects only started with the dosage increase of Axinitib so hopefully all will be well back on 5mg.
So my treatment continues it’s my immunotherapy infusion at Nottm City Hospital on Wednesday and I continue to fight the fight as the saying goes with everything crossed.
I hope this gives some hope in what can feel like a scary place.
Squidgy hugs (Trish)xx
This is incredible news. Sending love and positive thoughts to you- keep up the amazing work 
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Hi Sandra I am on Avelumap infusion every 2 weeks with Denusomap injection every 4 weeks and Axinitib tablets 7mg just reducing back to 5mg twice a day. Also since last Friday I am on thyroxine and big doses of vitamin B6 three times a day.
i am really really pleased, I feel I should be jumping with joy and will do when the side effects hopefully start reducing with the reduction of Axinitib and the additions of thyroxine and B6. Also because this has been the return of cancer after a two years I can’t help but worry that it will return again, though carrying on with the immunotherapy will hopefully catch any more roque cells.
Got to live for the day and as soon as my sore feet clear I will be jumping 
hugs
Trish x
Thank you so much for the positive thoughts and good luck to you too…got too keep doing what we are doing ️️
