Hello gang, l am back on an old theme, which is the random exhaustion and depression. I am out of chemo, "GEM/CIS" with Stage 4 kidney cancer and touching spine and invaded PSOS muscle. Diagnosed a year ago received 8 doses of the chemo which ended in January, 2022. I was physically OK and walking up to 6 or 7 k a day and "ParkWalk" weekly walks with groups. Since then, however l appear to be going backwards!. Althoug scans show stable for a year!
1. Walking is becoming, on some days a bit of a strength and energy challenge. It is randon but more frquest 5 mths after ending chemo.
2 i am getting, again random lower back pain which had been controlled with 2 x 10mg slow release morphine and 4 mg Dexamthasone..
3. The Oncologist recommend reducing and stopping Steroids AND Morphine which l did but suddenly, "cold turkey" .(no one said to do it gradually). He then advised to subsequently treat any discomfort (PAIN) with 5ml liquid morphine. AND that seemed to work but l was using the liquid morphine on a a daily basis at various times, as and when pain/severe bach ache, was TOO uncomfortable but ONLY using ONCE per day. In my mind using 5ml liquid morhine in that frequency, was better than 2 x 10 mg slow release tabs on a reqular but continuos basis. BUT WHAT DO I KNOW?
4.So finally l am now negotiatiing with local MD, whether to return to original medicine regime, i.e. 2 x 10mg daily morphine slow relase tabs.with 4mg steroid or or to just maintain the random occurring back pain with 5ml liquid morphine. ?
All this underpins my exercise and health status which was that where l was getting the occasional bad days (when total rest was the only answer), maybe every other week or so; l now, 5 months from chem end, the " bad days" are getting more frequent.
If any one is in a similar position then let me know because l wasn't really expecting to experienxe a gradual strength decline especially with scans showing stability/dormancy for 12 mths.
On an uplifting note l saw QUEEN at The 02 on Sunday with Adam LAMBERT. Absolutely brilliant. Happy dsys apart from £250.00 London Taxi Fare 'cause we missed the last train by 20 seconds 
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Hi Sandy, never in a group but just used to jam along with a couple of mates and now my Grandson. I'm an AC/DC Fan 
and he likes Ed Sheeran 
We compromise with AC/ED
I'm OK just random worries. Love Adrian
How dare you Aileen, l shall report you to Boris and as we know he will laugh it off. Anyway on a more serious note just had a positive on a FBOT ( google it ) so more tests and cameras, lights acti Love to you space invader. Adrian
