Immunotherap

Hi there, I have just had my sixth treatment of immunotherapy, I am on Intravenous Avelumab every two weeks with Axitinib tablets twice a day and Denosumab injections once a month for my bones. So far I am feeling well on this type of immunotherapy with very few side effects at all, maybe a tad tired the day after treatment but nothing to stop me carrying on and an excuse to give myself a bit of a quieter day. 
i do find that I feel really emotional but I think that’s the getting my head around the cancer and it’s implications.
There seem to be different treatments but the one I am is ok  I am now wondering if anyone else is ion this immunotherapy regime.

Good luck and I hope all goes well for you .

Dear Squidgy hug  thank you for your reply.l know what you mean about the emotions and the cause thereof. My poor wife has had to cope with me crying over the most unusual thoughts i.e. seeing a film with young RAF boys flying Spitfires in the last war and on the other hand,  a robin singing in the garden. Quite normal l think and your right, it's having our illness  or any illness, l think our emotions help balance the mind out. I am glad your coping well and you sound sooo positive. Thanks you give me a happy outlook. Adrian

Hi Adrian, 

i am so glad someone else feels so emotional, Brian my hubby just chuckles says ´and there she goes again’  and gives me a hug. But in general I am continuing much as normal on Immunotherapy but I have only just had my sixth session.  I had a radical nephrectomy when in November 2019 my  left kidney, tumour and lymph nodes were removed. I then had  regular CT scans that were clear, but my last one this October showed a bit of the beggar  had escaped and I now have left ischia metastasis around my hip and lung/pleural nodules….. now it’s a case of fighting the blighter again but at the same time continuing and enjoying life.

That’s easier to say today as the sun is shining and the sky is blue  and that emotional rollercoaster is somewhere near the ‘ok’ sign.

Take care and get as much information as you can from your consultant (not dr Google) on what type of immunotherapy you would be on and what side effects there are so you can make an informed decision …..and as I havn’t done yet ….see if anyone else is on the same  course of treatments and how they are coping.

Best wishes 

Trish

Hi I'm on both im actually sitting here now on the drip second  time I've been and o  same tablets all ok up to now x

Oh that’s good that’s the first time contact with anyone on the same treatment, hope all goes well for you, which hospital are you with ? I am with Nottingham city Hospital .  
all the best

Clatterbridge on the wirral secon lot today feel bit sickly this time but I'm sure all is OK its ok there nurses are lovely and treatment went pretty quick

Hello again, l am at Southend super nurses who l have nothing but praise for. Glad you got a response, it can be a bit disappointing if you put out a post and nobody answers. Keep up the treatment. u know what they say, "Keep positive!" Adrian

Sounds like your husband and my wife came from the same school of underdtanding! You are sooo right about the sun, doesn't it make a difference.

You're right about Dr.Google, according to him l should have popped my clogs last year Take care Adrian

Chester fc …..Hope you are ok .

I am new to this cancer thing ….I had a tumour , had it removed, they told  me they had got it all and I got on with my life except for the scanxiety at scan time.
Now it has hit me again but this time with a heavy punch. But life is for living and  though I am going to allow my self time to wallow in self pity for a bit ,  I will put on my big girl pants and live my life …..I’ll probably have to put braces in them for when times get hard …oh and pockets  for tissues.  It’s not easy  but just got to do it x