kidney cancer and kidney disease

Hi Sheila12 and welcome to the community. The way you are feeling will be familiar to many of us. I had a different cancer, but I know the mad thoughts that will be going through your head at the moment. You have a good support group, but there may be things you do not feel like telling them. That's where this community comes in to it's own. You can say things here that only people in the know would understand. The early days of uncertainty and not knowing can be the worst. Once treatment gets underway and you know the full story, you then have something positive to focus on. As regards treatment, I am sure some of the group members will be able to help. Wishing you well going forward.

Hi Sheila12,

Welcome to the community.  I'm sure most of us have been where you are now.

I don't know if you have specific concerns about your heart or if this is part of the pre-op assessment that everyone has to go through.  I know that because of my size (27 stone) I had an assessment for sleep apnoea and when it was confirmed that i was a sufferer I had to learn to use the machine to help me breath whilst I was sleeping and use it for four weeks before they would consider letting me have the operation.

It always seems like ages before anything happens but the doctors are simply trying to minimise the risk to you.  I had to come around after my op in intensive care rather than a post op ward but the operation was just the same, just a little bit more monitoring afterwards.

The operation is major surgery but it varies a lot how people recover, some are OK with minimal pain and back at work in weeks, others struggle to get back to where they were.  The one consistent message is avoid the constipation.  The meds leave you struggling to move your bowels so drink plenty of liquids, plenty of fibre and if you don't go the first day after the op ask the nurses for some medication to assist you.

You might find it useful to complete your profile (just click on your name on the top right of the page and then click "edit profile") as it saves you having to repeat your circumstances.  You don't have to put a lot but a few bits of information can make any answer more relevant.  You can also click on other peoples profiles to see a little bit about their story.

I know that others will be along before too long to offer their own reassurances.

How did you find out about your cancer, did you have symptoms or were you like me and discovered it entirely by accident?

Love and hugs,

Gragon xx

Hi, I was also diagnosed a month ago with kidney cancer (right kidney) apparently 3cm. This was diagnosed incidentally after I fell from my horse & had to have a  CT scan. After a ten day wait tomorrow I receive the results of a second scan to check if it has spread . This  is via a telephone appointment with the consultant. To my family and friends I have put on a false front showing only positivity but inside I have no idea how I'm feeling or even how I should feel ? fear mixed with apprehension is  all I can say. The past month has been (internally) a complete roller coaster of emotion. Apparently if it hasn't spread I will be going to Southampton to have Cryotherapy has anybody  on this group had this treatment ? can you tell me something of what to expect please. This site has been an amazing font of support & information for me & I am sure lots of others thank you

Welcome to the club. Freezing the tumour  is not new, but good luck with the treatment.

Welcome to the community jmo,

You have come to the right place on this site, most of us have been where you are now, you will find someone who can help you, if you have any questions just ask and someone will get back to you, I hope you find some comfort and your doctors explain all your treatment take care