Firstly, I would like to wish happy new year to everybody here.
My main side effects initially were intermittent nausea and high blood pressure.
Now, after 8 months of immunotherapy I have aching limbs which are not too bad and really quite a minor issue. I have acid reflux which I am hoping to control by cutting out any food or drink which seems to trigger it. I guess that ultimately I may have to go onto lansaprazole or similar but would like to avoid it if possible.
I also now have early signs of hypothyroidism and will probably have to start taking drugs for that.
And finally I have a macroadenoma on my pituitary gland which causes no issues itself but will have to be surgically removed eventually before it can cause problems. It was discovered by chance when having a CT scan for aches in the back of my head (which was fine). I have since had an MRI and a petct scan. This last could not be carried out at my local NHS as they don't have a pet scanner but at Coventry university hospital which is where the op will be performed. It's 85 miles away.
I was wondering if anyone else has experienced these things and how did you deal with them ?
Many thanks
Vicki
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007