Lenvatinib then cabozantinib

Hello Bella (BellaC) 

I am Brian, one of the Community Champions here on the Online Community. I have just noticed your post has gone unanswered. I can't answer your question myself as I have a different cancer, however by me replying, your post will be "bumped up" to the top of the page and I hope seen and replied to by other members of the group.

I wish you well with your new treatment and hope you don't have many side effects.

Best wishes - Brian.

I've had the pleasure of these two treatments, just in the reverse order.  I switched from cabozantinib to Levatinib in August.  I was on cabozantinib for 15 months.  The important news is that I saw a big reduction in tumour size initially.  Then I had slow growth in the tumor again, hence the switch.

I've found side effects to be very similar.  First up is the usual fatigue.  I was a fit person but I found my walking limit to be about 5 or 6km with cabozantinib and even less now on Levatinib.  But I can still get out, pretty much every day.

Next major issue has been diarrhea.  I lost a kg every month for 12 months on cabozantinib until I discovered that I had become lactose intolerant.  I only found that out when the nurses suggested I drink more milk to try and increase my weight.  The results of extra milk were disastrous, so I tried switching to lactose free alternatives and my diarrhea cleared almost overnight.  It does limit your choices when eating out, but a minor grievance!

I've seen a few other 

Finger trouble saw me post that halfway through my sentence......

I've seen a few other side effects but generally all sorted out with other supplements such as thyroxin and magnesium or other medication such as mouthwash. Best wishes with the treatment.  I hope you see the same reduction I did.