Treatment of Metastatic RCC

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My right kidney was removed in January 2020 and everything ok until 2022 when I was told I had Metastatic RCC and lesions had been found  in several locations.  Since then I have been on “active surveillance “ with CT scans every three months then phone calls with nurse specialist to discuss results.  Most of the lesions disappeared apart from on my liver and right adrenal gland.  They were slowly growing but causing no problems.  I had my last scan at the beginning of this month and due a phone call in 10 days but suddenly got a call last week to say I need to visit the oncologist as my liver lesion has now grown to 4.3 cm.  I was told that I’d probably be discussing treatment.  So trying to get myself prepped for this appointment I’m trying to find out what treatments people have had and how effective they have been.  Thanks for any information you can give.

  • Where were metastatic lesions? Only in liver and adrenal? Any pathology results with regards grade or sarcomatoid / rhabdoid?

  • I was PT3a stage 4 clear cell, sarcomatoid.

    i had lesions on my left lung which disappeared over time, whilst the other two continued to grow but biggest jump has been in last three months from 3.5 cm to 4.3cm.  Adrenal gland at 2.8cm