Ipilimubab and nivolumab treatment effectiveness?

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Hello everyone,

I had a radical nephrectomy 2 months ago but have just found out the resulta of my latest CT scan that there is cancer spread. It is an aggressive form of cancer called sarcomatoid. I have been offered ipilimubab and nivolumab immunotherapy treatment. Has anyone had experience of this type of immunotherapy and it’s effectiveness in stabilising/shrinking and killing off cancer cells?

many thanks in advance. 

  • Hi  

    I don't have any any personal experience with ipilimubab and nivolumab but noticed that your post hadn't had any replies yet. I've searched the group and found these previous posts which mention these drugs. You could have a read through some of the more recent ones and reply to any where you think the poster might be able to help you further.

    While you're waiting for replies, it would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Wishing you all the best

    x

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi there.  I'm on ipi/nivo.  Big fan - it does what it says on the tin (for me) although everyone is different.  

  • Hi Poplar,

    I’ve had the first 4 sessions with Ipi/nivo, no major side effects for me and my last scan shows the tumours are shrinking (kidney, head and lungs) Now continuing on single dose nivo. So my experience is good so far. Hope yours goes well too.

  • Thank you so much for your positive reply, it is reassuring to read. Wishing you all the best with your treatment.