Hi I’m new to this back in nov 2022 I had a CT scan for a persistent flank and back pain last 2 yrs . They found a modular thickening where the tube attaches to the kidney slightly enlarged kidney pelvic ? It was thought TCC and needed urgent referal
I was fast tracked for camera on the kidney but sent to wrong thing sent to bladder camera. But they could do that either as I had an infection. They referred me again after chase I g that up the MDT said they thought it wasn’t cancer but couldn’t rule it out and I had to have another CT scan in 8 weeks well that was 4 weeks ago still not heard anything.
Did I understand correctly Sue 11 - you're waiting for the CT scan date to come through? Mine frequently come through with less than 2 weeks notice. This is for the ones the oncologist has requested in a specific week, which sounds like what your MDT has asked for? I phoned mine up once because I hadn't heard anything (impatient!) and they just advised it was on the list, just not scheduled. Part of the issue at the start is learning how everything operates I think.
Reading these, I'm starting to think so far i've been pretty lucky! Haven't had to wait more than a few days for either scans and mri's, or results. And my consultants assistant has kept me upto date by phone, with appointments. What jumps out at me is something Mmum said in one of her comments, is about gentle "reminders". Don't be afraid to give em a call, to ease your mind. Your specialist nurse is there for you for, to help with these worries/concerns and if necessary chase up your consultant for you.
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