Hello everyone, just popping in to say hi to all, and have recently joined the roller coaster journey we have all found ourselves on. I have a bit of reading to do, to catch up on what to possibly expect and by the looks of it, some very good advice. Obviously, i realise it'll be a little different for each of us. My current nemesis is "metatstic renal carcinoma"", with a 2ndry bone tumor (left femur). Don't know yet if i'll get to keep the leg or not. Will find that out when I get to Stanmore, fingers n toes crossed it'll be a hip replacement.
Hello 
Welcome to our friendly caring group. I really hope that the news is good about your leg. It’s good that you have posted….whether you go through good times or bad, we walk beside you. You can post, rant, ask questions and we will respond.
Sending you one of my legendary big hugs 
Jules x
Thank you both for the warm welcome. 
I'm usually quite a strong person generally, and not an awefull lot effects me really, with a fairly possitive outlook and attitude about most things. Experience is a great teacher!! One or two close family are a little shocked and upset, but it's no different for most families. A common question atm has been "arn't you scared". And my answer has and will always be no 
This disease is an unwelcome visitor in our lives, and i'm going to do my very best to either get rid of or keep it at bay for as long as I can!
There are some very clevour people, who are going to do their very best to help myself, and family, and you all, get through this as best they can. In an ideal world "we all have a happy outcome", but reality can be cruel and heartbreaking.
I see the ortho specialist the week b4 last, and the oncol last friday, so this is all still very new, and early in my journey. Would be nice to keep the leg Jules, that's for sure 
but it's been the source of all my pain so far, and to be honest. I think i would be ok if it came off. The pain has been the one constant, that i've found myself battling with. Pain relief is now being managed a lot better with Zomorph. So we'll see. Best case, a hip replacement.
Mmum, i'm usually quite a patient person. My Gamer tag is "Saintly". 
yep i'm a 56yr old gamer! Waiting rooms can be fun, I always start chatting to everyone - Patients/nurses/reception. I've worked in hospitals, have several family members and friends that work in my local hospital, so it's not an overwelming environment/horrible place. Plus I'm an NHS Volunteer Responder, so will probably end up offering advice here once up to speed on everything.
So why am I here? Simple answer is - I have no clue 
I suppose to learn more, be better prepared for whats to come. Tips n tricks and stuff. All thee stuff the Docs, don't tell you unless you ask.
Andy
PS. The double d in username was a typo lol. But i like it.
Edit: Almost forgot the Kidney lol - erm the cavity on the right side where the kidney is supposed to be, is just one massive blob of a tumor! I think the plan is to remove it at some point. Not sure yet if chemo 1st or surgeries. Part of the waiting game is waiting for a phone call or an email for the next appointment. But there are others infront of me and there's only so many hrs in a day. They'll get to me when they can. 
haha ! 
The double d in username was a typo lol.
Also "Andy" is already taken lol
I hope you manage to build great trusting relationships with your consultants. I think that's the key.
Claire xx
I totally agree. Consultant and specialist nurse were very sollom on the 1st consultation, I'll work on that 
hmm there's more than one of me? And there's me thinking there can only be one. Double d is fine, it almost makes me unique again lol xx
