Recent diagnosis

Hi  and a warm welcome to the Macmillan Online Community but sorry that you needed to find us and I am especially sorry to hear about your diagnosis. 

Although I had a different type of cancer, any cancer diagnosis brings many questions, lots of confusion and stress but talking with other people who are on the same type of journey will help you navigate this rollercoaster. The Community is organised into dedicated support groups so can I see you have joined our supportive Inflammatory Breast cancer group, this will be a good place to connect with others navigating the same type of cancer journey.

When you have a minute, it would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time. 

It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.

Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.

Sending you welcoming hugs Bx

Hello I was diagnosed in January and have had my 5th chemo a few days ago. I would like to connect with someone with the same diagnosis as feeling that there’s not many folk with IBC and  it feels horrible and scary  

Me to Julie J, see my post below, I feel the same x 

Hi JulieJ, I have got all the symptoms of IBC in both breasts which started out of the blue 4 days ago. I have an appointment in the breast clinic in 4 weeks. I was given antibiotics by the GP which have had no effect. Although your post is from a few months ago I was hoping you may be able to share what happened in your case. I did post for the first time earlier but have had no replies so far. My worry is that 4 weeks may too long for this type of cancer. I am really scared at the moment and am finding the pain is a constant reminder of what is happening even when I am trying to think positive thoughts 

Hey. I also have all the symptoms in both breasts.

I have the dreaded 2ww.

I have blotchy red patches on both breasts and lumps. 

No swelling yet.

How did your diagnosis go

X

Hi Julie, did you find someone? My mum was diagnosed in August this year.