Potential Inflammatory Breast Cancer

FormerMember
FormerMember
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Hello there

I recently posted my concerns that I may have IBC.


I have seen numerous GP''s since November when I reported severe breast and armpit pain.  A registrar diagnosed me with Costocondritis. 


A rash keeps coming and going on right breast.


Tonight before washing for bed I thought I would check myself again. To my horror I seem to have what appears to be a huge insect bite, aggressive red that looks as tho it may erupt by the morning. I have NEVER in my life had anything like this not even when my beautiful children were babies.


Because the pain was severe and ongoing the registrar at my GP practice wanted to refer me to the Breast Clinic for an ultrasound because I was very tender indeed. However,  she changed her mind after consulting with another GP at the practice and the referral was not made.


I have also heard it on good authority that a Consultant at Breast Clinic in Inverness in the beautiful Scottish Highlands has made an executive decision not to take referrals for women complaining of severe pain.  I heard that he tried to turn a lady away after her waiting for some time for the referral and told her in his infinite wisdom that pain is not characteristic of Breast Cancer. She however, stood her ground and demanded her appointment be honoured. She was subsequently diagnosed with Breast Cancer.


To say I am now stressed this evening is an understatement. I have never had such an aggressive looking mark on my breast, ever. 


I am undecided if I should attend A and E or wait until Monday to see my GP.


I intrinsically knew in November that something was wrong. One GP even blamed my breast and armpit pain on my posture because I have a spinal condition. I have lived with spinal pain for 14 years after having had surgery and not once had associated breast pain.


A few comforting words would be appreciated right now x

  • FormerMember
    FormerMember in reply to FormerMember

    Hello

    I am new to this and looking for some advice. 


    I was having a shower on Thursday evening when I noticed s small circle on the edge on my Areola. It looked like a blister if I’m being honest with you so wasn’t too sure if it was a bite. 


    I googled which I know is the worst thing you can do & my head is spinning with everything I’m seeing about Breast cancer. 


    I have had no symptoms to match this it’s not sore, painful, no lumps, no rash just that circle. I have been sweating more than normal recently due to me being on my lady time.


    Ive had Ringworm on the back on my neck. Which has been coming and going over the last few months. I was prescribed Fucibet cream (Anti Fungal Cream) so I’ve been cleaning it with a mild soap & then putting the cream on covering it with a plaster to keep it drywhich seems to be working doesn’t look are inflamed it looks like it’s got a ring around it with blister like skin that’s dried. 


    So my question is could it be IBC?


    I’m freaking out really sorry xxx



  • FormerMember
    FormerMember in reply to FormerMember

    Hi Laura my advice is that you.make an appointment to see.your gp asap,this is the best thing to do,as.you will.only worry and everything will get out of proportion,your gp will tell you what is going on and as you have all ready had ring worm there is a possibility that it has returned somewhere else.I hope this helps ,best wishes Dianne.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi there

    I understand your distress.  


    I too been having serious problems with Breast as you will see if you read my blog.


    Approx two weeks ago, on top of chronic breast pain I too had what looked like a bite mark emerge on my left breast.  My husband sent me straight back to GP. I saw a junior doctors who said it's probably a hair folicle, I had to bite my tongue and not say 'it's my husband with a hairy chest, not me'! Anyway as it so happened my own GP, a man, was in consulting room next door. He said I had been coming back for 5 months and this new mark prompted him to refer me at last to breast clinic. I was given an antibiotic cream but mark still there. 


    Pain was getting worse so husband said to phone back and get an antibiotic which I was given. Husband thinks I have a bi-lateral breast infection and we think it's spread to my upper spine and armpits.


    I collapsed on 5th April with spinal compression so am now on Oncology anti-sickness and 24hr slow release morphine which is helping the breast and upper spinal pain enormously. 


    I see consultant on Wednesday.


    If I were you, you will know your own body and if this is not normal for you I would get it checked out as soon as poss.


    I have young children so don't talk about my fears in front of them so as not to stress them. I use this forum for quiet support and peace of mind.


    Hugs xx

  • FormerMember
    FormerMember in reply to FormerMember

    Afternoon folks

    Update.


    I had my Breast Spot today. Whilst an in-patient last week in the hospital I had a chest xray which showed white patches on my lungs and was also told I have crackling noise coming from lungs.


    I was examined today and under arms still v tender however now that I am on slow release morphine I did not present with the significant pain I have in both breasts. I was told small red eruption mark on left breast most likely to be an infected hair folicle. Had antibiotic cream and antibiotics and mark still present. 


    I was not scanned in any shape or form. I wish now I had pushed for it for peace of mind. Consultant said white patches on lung's would appear to be a red herring but I still have no explanation as to why this is the case. 


    I am fearful the NHS playing Russian Roulette with my life. I have two beautiful children to think about. It's made worse knowing our NHS seeking a 15 million assistance from Scottish Executive to fill a black hole.


    I don't know what cancer looks like on an xray so some feedback would be appreciated xx

  • FormerMember
    FormerMember in reply to FormerMember

    Further update 

    Just phoned the macmillan help line just after 5pm this evening. Lady was a tentative listener and is getting a nurse to call me back tomorrow at some point.


    Going back to GP to request yet another referral to the Breast Clinic. Husband is not happy and neither am I. 


    I feel we were just walked over. Now I am upset and not taking any more nonsense. I made a decision last night that if I was diagnosed with Breast Cancer today I was going to fight it head on on behalf of my beautiful children.


    It's a worry that hundreds if not thousands of lives could be at risk as a result of lack of government funding. 


    A 'friend' said to me in last fortnight that NHS is a priveledge and NOT a right!! The said friend had access to private health care at the drop of a hat, perks of her husband's job. My husband has never signed on in UK for 30 years and I myself worked from age 12 to 32 prior to having children.......

    .

    What happened to good old fashioned manners and real empathy for people, who thro no fault of their own are touched by life but still trying to make the best of it. Sigh!

  • FormerMember
    FormerMember in reply to FormerMember

    Update: made a huge effort to get to Breast Clinic appointment yesterday morning for 9.15am. Saw Head Breast Consultant Mr Daltrey. He examined me and noted I am v tender under the arms. He saw red mark on left breast but said it was an infected hair folicle! He did nothing. No mammogram, ultrasound or needle biopsy. He sent us away and said tissue appears healthy. John said hang on, last week when Sian in hospital they found a crackle on her lungs. She was xrayed and found to have white patches on lungs. What us going on? Mr Daltrey dismissed him and said it was merely a red herring! I was upset yesterday that I did not stand my ground.  I heard that a consultant at Breast Clinic issued a directive that if a person presents with pain only, they will not be seen. A local lady had an appointment and presented with pain only. The clinic refused to scan her. She stood her ground. Got the scan and was positive for Breast Cancer! I got a phone call from Macmillan Cancer this morning. She was on phone to me for 45 mins. She advised that under the Scottish referral guidelines for suspected cancer a patient must be seen and scanned if presenting with skin changes and breast inflammation, which I did have. She advised to call GP back and request yet another referral to breast clinic but with a different consultant. Dr Paul calling me in the morning.  I called Breast Clinic to raise a complaint against Mr Dalry and he came back and defended himself and told me to place a complaint in writing with Complaints Manager for Quality and Patient Safety. I did this and copied it into Elaine Mead, Chief Executive for NHS Highland. I then spoke with a journalist at Inverness Courier and sent him a copy of complaint too. I want others within Scottish Highlands to be aware of what's going on within our NHS. Xx

  • FormerMember
    FormerMember in reply to FormerMember

    Morning all

    After 9 months of breast pain I am no further forward. I am still experiencing breast and armpit pain. I found a pea sized lump in left breast but it keeps moving around and as a result the GP a few weeks ago could not detect it and forward me to Inverness for a scan.  The GP noted I am v tender under both armpits and have hard areas, whatever that may be. 

    Seeing my own GP next week to see if I can get armpits and bust scanned as a matter of course. It surely cannot be Costaconsritis all these months later. The mark from the 'hair folicle' remains on my left bust. Not convinced it was a hair folicle.

    I don't know quite how I can secure a scan for my piece of mind. Any suggestions would be appreciated.

    Hoping everyone, despite our circumstances enjoying our glorious summer.

    Hugs x

  • FormerMember
    FormerMember in reply to FormerMember

    I should think you’ll get your answer when you get the results of your scan, IBS is very difficult to diagnose not many GPS have seen it, I was lucky my GP had but still had to go through scanning, and Needle Biopsi to be sure, I didn’t have a lump.

    When all was confirmedmy feet didn’t touch the ground

    sendin you a big positive hug.

    lynda

    xx

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you for such a lovely reply.

    I am finally getting a scan of bust, clavicle, under arm and shoulderblades in coming weeks. 

    I live with two bulges in lower spine so having to deal with two lots of pain is v tiring.

    It will be a year in November since the breast and armpit pain started so desperate now for a solution to all of this.

    A spinal specialist has suggested it may be fibromyalgia so at least this may be ruled out by the scan.

    It will be a huge relief to know one way or the other what is going on. I'm on stronger pain meds so this is helping and making me sleep more. 

    Will keep you all posted. Xxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi hope you are well!! Did you ever get to the bottom

    of this? Similar symptoms here!!