Hello all,
I was diagnosed with Stage 3B Hodgkin's Lymphoma at the beginning of April and I am currently part way through chemotherapy. I am due to start my third cycle Wednesday all being well with bloods. It's been an intense few months and it's all catching up today. I was hoping to meet or talk to anyone who is or has been through a similar experience.
Take Care,
Lotty xx
Hi Latty ROSOLotty and a warm welcome to this corner of the Macmillan Community but I am sorry to see you hoping us.
I am Mike and I help out around our various Lymphoma groups. I don’t have Hodgkin's Lymphoma but for some context I have been on my Lymphoma journey for coming up to 26 years first diagnosed way back in 1999 at 43……. when my first rare (8 in a million) ‘incurable’ but treatable slow growing Low-Grade Cutaneous T-Cell Non Hodgkin’s Lymphoma (NHL) was found.
I eventually reached Stage 4a in late 2013 when a second, also rare (4 in a million) type of very aggressive High-Grade Peripheral T-Cell NHL was then presenting so although my Lymphoma ‘type’ is different I most definitely appreciate the challenges of this journey rather well having had over 750hrs of chemo, 45 radiotherapy zaps and 2 Allogenic (donor) Stem Cell Transplants between Oct 2013 and Oct 2015…… and also dealing with Asbestosis for 14 years and just diagnosed with Prostate Cancer a few months back.
Let’s see if any of the HL group members will pick up on your post.
Are you in the UK Latty?
