Attitudes at good news

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When my daughter told her close workmate that her scan was all clear, she wasn't expecting the barrage of comments from the rest of the office and it has surprised me how people react when you tell them.  Mostly the comments were genuine i.e. "I knew you could do it, you're a fighter" (she didn't really have a choice, it she wanted to live she had to take the treatment) But another lady simply said "There's one to tell the grandkids".......Firstly she is single and already experiencing menopausal symptoms due to the treatment, but secondly I think this is a very insensitive comment.

It has left her wondering what her status is? Is she still a cancer patient? Is she a recovering cancer patient? Is she in remission? It's all very overwhelming. We both got the impression that the general attitude is that now the scan is clear - she is therefore better and able to go back to how things were before, when in reality, she is still so poorly with such a long way to go before she's anywhere back to how she was both mentally and physically.

I guess it's one of those scenarios that you can never foresee or predict. Not ungrateful for kind words, just wish people would think before they jump in - ok I am over protective but I make no apology for that.

  • Hi again  unfortunately, unless people have personally navigated their own cancer journey most people just don’t know what to say and often say the most stupid things.

    Your daughter is entering the final 1/3 of the journey…. the first 1/3rd is the diagnosis period…… with the middle 1/3rd being the treatment…… now it’s the post treatment world.

    You may find it helpful….. and indeed your daughter as well, to make a cuppa and have a look at this great paper After Treatment Finishes - Then What? by Dr Peter Harvey as it highlights the post treatment milestones.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Hello me again (Pete) - people's reactions are varied often based on there own life experiences. I agree with your comments re - the "fighter" statement. But I would take it as a complement. As for the "grandkids" mention, then two things spring to mind- did the person say it know of the premature menapausal side effects? Secondly the person sees a long life for your daughter - I would take it in a positive manner. I bet if someone asks your daughter "How are you?" she replies "OK".

    Status???? She still feels poorly - quite understandable - do her colleagues know? And there could be a long recovery period. After a bit she will be defined by who she is as a person - not "Mary who has/had cancer" but "Mary".

    Mum's are entitled to be over-protective or even protective. You all have been through hell. And don't forget what I suffer from - PBS. Pimple on the Bum Syndrome. Get a pimple on your bum and you think your leg is about to fall off. Hightened awareness - wish there was a cure for it.

    And  agree with Mike Thehighlander's statement re post treament discussion paper.

    The best status is when you are laughing with friends and family - you are an equal and more so with a hug. Have plenty of both.

    Pete + long distance hug(s)

  • Thank you so much for this - It's a bit scary of how much of what I said to her today, he covered in this paper. But amazing when you actually read it. I almost want to print it off and hand it out to the well-wishers. (I won't), but I will get my daughter to read it because I know she will take comfort from it.

    Thanks again

  • I know a lot of people who have actually done that very thing in their work place…… 

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • You are right, when asked how she feels, she does say ok! I intend to hold a garden party for her in a few months time to celebrate her 30th that she missed due to chemo (what a way to celebrate) she can have as much or as little, even if just family come, it will be a relaxed, at home excuse to eat. "One day at a time" has been my mantra for many years, it works for me.

    Thank you for taking the time to reply.

  • Actually Lymphoma Action run a very good Lymphoma Focused Live your Life Course that is a peer-led self-management course for navigating the post treatment world - worth having a look ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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