Hello my husband of 10 years (june8th2012) together 14 has been diagnosed with non hodgkin's follicular lymphoma 
we've been told its incurable and life expectancy is 10 years at best... If he responds to treatment were currently at watch and wait stage and im loosing my mind looking at him every day... 
Were putting things in place... Arrangements for when the time comes, never had life insurance and im trying my best to find a way of explaining to our youngest 2 8 and 7 ive been introducing story books, i read at bedtimes to them so introducing stories in hoping when the time comes they'll go back to this memorable time and it be a comforting memory and a bit easier to understand hoping we sti have years to go, before this even has to happen but then I'm reading peoples comments about being cured and coming to the end of treatment,... And i know this isn't the case  please can anyone help ive not reached out or spoke to anyone we have a great specialist nurse and hematologist consultant who have explained everything to us and yet.... I im not really sure I ve days where things are great and laughing smiling and then other days I can barely look at my girls or oh without crying
Hi DD1987 and welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups.
You say that your husband has been diagnosed with NHFL - Non Hodgkin's Follicular Lymphoma.
This group specifically covers Hodgkin's Lymphoma only. Hodgkin's Lymphoma is rather different from Non Hodgkin's Follicular Lymphoma so could I suggest you join our dedicated Follicular Lymphoma group then copy and paste the text from this post into a new post in the FL group as this will open your questions and support up to to a more specific group of people.
I was diagnosed way back in 1999 with a different type of Low Grade- incurable - stage 4a Non Hodgkins Lymphoma and I am still arouind 22+ years on doing great.
i will keep an eye open for your post in the FL group and this will be the place where we can keep your support together ((hugs))
Thank you so much 
