Recently diagnosed

Hey Cezza. You'll put on weight due to inactivity I found, and also obviously you're being pumped with / are consuming a lot more liquid than before so it all adds up.

Were you an "a" or "b" case? Weight loss is a b symptom, but not everyone gets skinnier. Maybe rads patients like me do cos we can't eat :)

Yeah I normally run but not sure I could at the moment. I'm also, when I've just had chemo, drinking full fat coke and craving sweets. That'll be why then..haha

I was a B case. I didn't loose a pound. 

I reckon, well I know, I've put 8 pound on since treatment. I'm normally a healthy weight. I'm worried I'll be massive by the end at this rate.  I told people to stop bringing chocolate and cakes! haha

Cezza - weight gain/loss; There are other symptoms, that get one classified as a B, (which I was), - night sweats, I think, weight loss, and, err, damn, can't recall the other ones; I'm still a little unsure why I ended up being 2B, not 2A, stage/classification; I had been loosing weight, for years; I'd reduced my diet, down, so was eating a lot less, to gradually loose weight; had gone from 17 and a half, perhaps a bit more, stone, down to my lowest weight, just before this Christmas, of 11 stone 10 LB; now, admitidly, I was a little supprised myself at the time, when I dropped from pretty much 12 stone on teh ball, down another four pounds; but assumed it was my keeping up with the reduced portions that I'd been eating, over a number of years, to loss the weight; however, now, yes, perhaps the lymphoma helped me losse some of those final pounds! damnit!; Soon as I was on chemo, I was diagnosed with the unrelated Addison's disease, and was put on to seteroids; I just ate all through chemo to feed the steroids; and put on about a stone; ending up pretty much at 13 stone; since I've been reducing my steroids I've dropped a few Lb, now down to 12 stone 12 Lb, and hopfully will continue to lose, now I've cut the hydrocortisone/steroid further; are you getting a lot of steroids, as part of the chemo?: I think some are used as anti-nausea drugs (I never really took any anti-nausea, cept for the couple of tablets they made me take for the two days post-chemo infusion, and for the tablets I took each infusion as a pre-med). - STeroids are so horrible!; I was just eating buckets of pasta etc! - combined with which... certainly if your fatigued anything like I am... there is an aweful lot of sitting or laying about, wher eone might normally be m ore active... - I'm still trying to fight against the fatigue and walk more; if I can escape teh worse affects of the fatigue from my radiation the plan is to walk too, and back from the hospital, each da for the 15 fractionations, that oughta be, a good  30 hours or so walking over the three weeks, asides any other walking I get in... - I was like you so looking forward to the cancer side-affect of lossing even more weight! ; mind, I'm not entirely sure getting to a 28 inch waist is really a sensible or realistic goal at my age, but... damnit, I'm still trying for it!

Thanks Mark - yeah have some steroids but only once when getting the chemo. Sounds like you've done well over the years with your weight - good on you. 28 inch waist sounds tiny mind. You're making me feel massive..haha

Aww; thanks; I think seriously, the 28" waist is just... a pipe-dream; I wasn't that even when I was 15!; Im 32" waist now, and I doub any smaller would make sense really; I'd actually start looking over skinny.. - afterall no matter what weight I've been I'm always a 48" chest!; I'd be unab unbalanced and topple over! - I put on a lot of weight, after I lost my sight, and it took me a lot of years to lose it; but I didn't diet; I changed my diet, in the hope, that it would be perminant; then, like oh so many things, this damn lymphoma came along and mess all that up!; I was also consciously trying to get to my ideal weight; which I had, basically, before I got to being 40, which I had managed!; but, again, 'getting lymphoma before 40' wasn't really part of the master plan! - then again... best get it out of way whilst, as my doctors keep telling me, I'm younger, and have still got my age on side, as goes treatment etc...  Rest of this year looking increasingly like a right off; it'll end up being treatmtment, check-ups, etc., etc., then recovery; so I'm kinda hoping I can at least get my weight down to about 12 again, or a bit below, before teh end of the eyar; then hopefully the fatigue, chemo-brain etc., is all well vanished before next year; and I can hit January running, and do some serious catching up of fun stuff, I've missed out on this year, like trips away, getting married, and,.... well, everything other than spending what seems every waking minute either in hospital or thinking about cancer! - its .... all a little bit totally occupying.... - yes 'cancer-fatigue', as in the 'tiredness' fatigure', but, to be honest... I'm thinking now I'm just getting tired with cancer... full damn stop! haa!

Hi All,

Busy day at the farm, kids were all brilliantly behaved and had a lovely time. 12 of us for tea in the end so we rang our favourite Indian! Shattered now but was well worth it.

Phil, just done a sin dance for you, tomorrow you will see an orange ball on the sky which you may not initially recognise!

Daisy, Cezza hope your fatigue begins to lift soon and you can enjoy your good week with the little pickles. If the sun comes out get your chairs outside and set them up with a few activities that you can mainly watch. 'painting' with water is a fun and non messy one or stick some shaving foam in a bowl and make summer snowmen, keeps em busy and cleans their nails beautifully! I bet it's really hard with littlies when you are fatigued!

Hope everyone else is feeling ok

more tomorrow eve, we going to watch the erotica tomorrow 

Love Jakki xx

Just a real quickie as in those down days post1b ( god is that all!!,) and my chest infection seems to have come back... Anyone else had this during treatment? 

Phoned nurse waiting to hear back so just in case anyone lurking on here who can stop me panicking would be great, 

happy Father's Day to any dads out there, I hope you are being spoilt. 

Been reading all your posts but not had any energy to reply yet but I will when I get thru this bit. Xx 

Sensible precaution, hope nurse gets back to you soon. A chest infection can be nasty, hope you have antibiotics? If not, then hope you soon do! Take care

hugs xxx

Morning all....day 6 after chemo and still exhausted!! Cezza, re weight etc I'm freaking out about just the opposite!  Was bit overweight when this started but have been losing as struggling to eat!  No appetite.....I was staged as 3a as no night sweats, weight loss, itching (is this a B symptom?) anyway didn't have any.....it's only since treatment has progressed that I'm struggling eating and weight coming off....this is worrying me as don't want to look even more like a cancer patient :(

Also Cezza, wondering how hair is holding up?  Mine seems to be growing which is bizarre? 

Dxx

Morning all!

I'm slowly getting toward normal again, bit of a cough coming in too I think :(. But otherwise am good

Oh my, a lot of stuff today ! Hope everyone is okay:

Mark - 32" waist is letting yourself go???!!! You are so lucky to default, I have huge, childbearing hips by birth (my waist is always around 34" even when I'm super fit)  ughhh stupid out of proportion body #mixedraceproblems 

Jakki - going to watch the erotica?!?!?!

Elena - it's okay, it sounds perfectly normal, don't worry; the bleo always mucked up my chest too during chemo (even if I was lucky enough to not stray into infection) - you'll have to go in and get some antibiotics to help your body fight the infections, but I'm sure it's nothing serious okay? By the end, you'll be like 'ugh, not again' and just go and get it sorted :)

Daisy - I had bad itching, that was my key symptom apart from tiredness :( - no night sweats or anything here (2a). However, I understand the weight loss; what I tended to get was that in week one after chemo I'd be like ughhh and not want to eat anything, and then in week two I'd eat myself out of house and home. Is it linked to yuckmouth (y'know, when your tastebuds go all weird)? We've found (we = us on thread) that ice cream and froyo tend to help you out a fair bit; I also rediscovered my childish love of chocolate during those times, which kept me going. I also tried to keep myself highly proteined, reasoning that my blood needed as much help as it could get; some scrambled eggs or something for lunch are so nutritious and easy to drink down I found :)

Also - on looking like a cancer patient. Ugh, it's thorny territory. As the lovely Moomy once told me, it's only for the time being, it's sad but at least you get free seats on public transport ;). I HATED having thin hair, I still inspect mine daily in the light, 6 weeks on from chemo, and feel all sad when I see the (now increasingly sporadic) bald patches in the light. Trust me - before long, it'll all seem like such a surreal time ago.

Best wishes to all (Phil, did you manage to get a celebratory cider / a dram down you?) - off out now :)

Tom