Hi I’m new! I’m also so scared.
I’m just curious if anyone’s ever been in the same situation?-
So for months now my lymph nodes under my jawline/ neck have been swelling and one side is painful. I went to the doctors. Had bloods done they came back al fine!! Had antibiotics incase it was an infection. But still this didn’t get rid of them! Fast track to 2 weeks ago!!
I was urgently referred to the hospital for suspected head and neck cancer 
seen a consultant at hospital. Then had an ultrasound and was due to have a biopsy that same day while at the scan!! HOWEVER, they didn’t do a biopsy as the scan showed lymph nodes are “reactive” and don’t look “abnormal”
MY COUSIN HAD THE SAME ISSUE AND WAS MISDIAGNOSED WITH STAGE 3 HODGKIN LYMPHOMA!! From the same hospital I have been under.
Im 27! I have a 8 year old daughter who only has me and I feel like I’m not getting any answers or tests for things I feel I need. I know my body I have the symptoms that also are symptoms of that cancer that my cousin had and I just want peace of mind and to get answers !!
I’ve had to email the consultant as the doctors “can not do anything to get you a biopsy just because you feel that somethings wrong with your body” - EXACT WORDS FROM MY GP.
Does anyone have any advice or been in this situation before?!!! I’m so scared and I don’t feel like I’m being listened to or understood!!
I have another FNA and scan 9th April but i just have this gut feeling every symptom I have apart from night sweats
I’m so scared
SORRY FOR LONG POST IM JUST FEELING HEARTBROKEN AND HOPELESS AND SCARED
Hi CherryBerryx and a warm welcome to the Community and sorry to hear about your concerns.
I am Mike and I help out around our various Lymphoma groups.
I don’t have Hodgkin's Lymphoma but I have been on my Lymphoma journey for coming up to 26 years first diagnosed way back in 1999 at 44…… when my first rare (8 in a million) ‘incurable’ but treatable type of slow growing Low-Grade Cutaneous T-Cell Non Hodgkin’s Lymphoma (NHL).
I eventually reached Stage 4a in late 2013 when a second, also rare (4 in a million) type of very aggressive High-Grade Peripheral T-Cell NHL was then presenting so although my Lymphoma ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
It is a challenging time for you especially in light of your cousin having to navigated the same journey before.
As you may well know the ultimate tool used in the Diagnosis of Lymphoma is a biopsy…… but as you were told the ultrasound showed your lymph nodes being “reactive” and don’t look “abnormal” you will have to keep working with your GP and look for your appointment 9th April to show significant difference to trigger further investigations.
Even although I was diagnosed with my first NHL back in 1999/2000 it took a full years and 6 biopsies to get the proof.
When the lymph-node in my neck started growing in Oct 2013 it was developing quickly and I had no pain….. the subsequent biopsy showed I had a second type of NHL.
In England there is a new requirement (Jess’s Rule) for GPs who have a patient presenting on a number of occasions with a developing condition to refer on for more in-depth investigations.
