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How soon after CRT for tonsil and lymph node cancer should you get TFT’s checked? I finished treatment on 15th May. Feeling tired most afternoons and if just sat on the sofa I can very easily nod off. Feeling cold ( I lost a stone and still at the same...
I was due to have my salivary duct cancer removed plus a neck dissection to remove lymph nodes and a cheek reconstruction on Tuesday 20th October 2026, but today they cancelled the operation until 3rd November 2026 as both surgeons who initially saw me...
Hi I’ve been on this group for a while now after previous breast cancer and then having my ovaries and fallopian tubes removed due to large ovarian cysts. I’ve had displasia on my tongue for 10+ years and many operations biopsies etc - but clear since...
My husband is going through radiotherapy for tongue cancer, we are in week three. All food taste horrible but when he does eat he feels full after just a child’s portion. Has anyone else had this issue. He feels full too after one fortisip bottle. Not...
Hi everyone, on Wednesday 19th I'm having a neck dissection at Leeds General Infirmary. Could anybody share their experiences of what to expect. Recovery time, hospital stay and any tips on being prepared. I've had 35 fractions of RT and chemotherapy...
Hi everyone.My Gp is not very approachable and I have quite a few things going on at the moment and need your 'recommendations for the following: Toothpaste& Oral Gels (SLS-Free Only) Alcohol-Free Mouthwashes Lip Emollients & Skin Barriers Saliva...
Hi everyone I'm now 9 weeks post treatment (6 weeks chemo-radiotherapy; tonsil cancer T3N0M0) and at my six week (7 1/2 week) review was hugely relieved to hear there's no sign of disease on examination. I made good progress in the early weeks but...
Have found the forums and chats useful as I’ve moved from diagnosis towards treatment, and thought it might be useful for me and others on a similar timeframe.
Hi, Ive booked to get MLD on my lymphoedema privately today. I’ve discussed this with my MacMillan nurse (I will listen to her) and she has warned against having it done prior to getting a clear PET scan. Just wondering if anyone else has done this...
Hi I have neck cancer, which spread to two nodes in chest and then ribs. I had two rounds of cisplatin and 5fu and cetux, where I had such awful side effects which resulted me in wheelchair and housebound except for hospital appointments. My team stopped...
